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can anyone guide me? my father has metastatic liver cancer

Bree29
Posts: 2
Joined: Aug 2007

my father was diagnosed 7 months ago.after my father had Avastin therapie, and then Erbitux and now Campto, our doctor says there is nothing more to do after this.Is that all there is?... Can anyone help. my father has his full liver with tumors (from primary colon cancer) so my doctor doesnt give us choices of other therapies, only chemo.

norarose
Posts: 1
Joined: Sep 2007

Bree29 My father was diagnosed with esophageal cancer that spread to the liver and they also said it was full of tumors. Diagnosing it as liver metastases.

He has went completely vegetarian and also organic. He is on the strongest chemo there is and he is doing really good. He was given 8 months and it has been 10 months and so far so good.

They don't see the cancer in the esophagus any more but the liver is still covered but much smaller now. Hope this helps and encourages you don't ever give up there are to many thing out there to help you through this.

Good Luck and God Bless You
norarose

dlpkuhn08
Posts: 8
Joined: Sep 2007

Bree29,

Just wanted to let you know that I too have liver mets that was full of tumors. I went through all the chemo's and then became a candiate for a hypatic liver pump. This is a device that is surgically implanted after removal of your galbladder. It is then filled with chemo (FUDR) and runs for two weeks at a time. The chemo only goes into your liver. I also had to have systemic chemo at the same time because of my colon cancer. My is a stage 1V.

Hope this opens another door for your dad.

Diana

hopefulone
Posts: 1048
Joined: Jan 2007

Sorry I got to this post late, but please check under colorectal cancer. You'll find many stage IV survivors with liver mets. (My husband is stage IV also with mets, however just had a resection after being told inoperable for 8 mos)Investigate theraspheres for the liver and rfa etc and definately get another opinion. God Bless
Diane

Skassis1
Posts: 1
Joined: Sep 2008

My husband was diagnosed with metastatic liver cancer, unk primary. He has been treating with Cisplatin and Gemzar chemotherapy since March 08. The liver tumors have shrunk over 50% so the results are great. We have not been given a choice of surgery or anything else- chemo was the only option. Recently there was tumors noticed on his cervical, lumbar and on his right hip bone- he just had radiation for the right hip. They are only watching the cervical and lumbar as it does not seem to be growing at all. Right now we are having good results from the chemo but we do plan on looking at other treatment, just don't know what yet. Hope this helps and if you have any specific questions I would be happy to answer.

kaynunes
Posts: 8
Joined: Aug 2008

hi, i read your reply to Bree......have a question. i too have a liver full of cancer that came over from the colon. i had surgery and part of the colon removed with a large tumor. i am a woman 75....i am receiving avastin and chemo...altho a small dose i think, i have no side effects. they said it cannot be cured, only controlled, maybe.....my question, how did they see the liver to know that the tumors had shrunk??? I dont know how they can check on it. I had a pet scan that showed 3 tumors on the liver, when the liver specialist went in, he said it was coveredd with small ones, so he did nothing. actually i feel good. am thinking the oncologist may decide to bump up my chemo. i have a power port......i heard theycan put a tiny camera down there. know anything about that.?
thanks, kay nunes. (i have a post here also.....kay@coopsweb.com.

Sincere
Posts: 1
Joined: Jun 2009

Hi, I also have a liver with 2 tumors and was told by my doctor after having a pet scan that they had shrunk...they compared the pet scan to the one 4 months prior..i have 2 grown daughters and a 7 year old daughter (they are the reason i continue to fight and God gives me the strength)....i have a post here t.bailey321@yahoo.com

elainey7
Posts: 11
Joined: Jun 2009

The Lord will continue to give you strength. Eat right, sleep right, and pray right! I'll pray on my end as well. I'm new to this met liver cancer but I'm ready to do my part to help and encourage others. God loves you and don't you ever forget it... Ellen Elaine

Lady Bug
Posts: 2
Joined: Jul 2009

My 16 year old son was diagnosed with the same type of cancer in May of this year. They say it's neuroendocrine with mets to the right femur,lumbar spine and his liver with the majority of ther cancer in his liver. The primary is unknow at this point. He was treated with cisplatin and etoposide with no improvemnet so far. Please let me know what your husband is being treated with so I can present it to my son's oncologist. Thanks

kaynunes
Posts: 8
Joined: Aug 2008

Bree, i am a lady 75. had surgery for large colon cancer, but it had gone to my liver and it is full.....i am on avastin with chemo once a week. i have had no side effects and tolerate it well, it may be a small dose only to control, cannot be cured. my oncologist said no to radiation (glad for that)...its a tough situation, for the kids too. i have 3 grown daughters and it hurts them. i try to keep a positive attitude, God is really carrying me. pray a lot. i dont know why the dr. dont add a little chemo to the avastin......, but how did they see the liver to know the tumors had shrunk??? i would like to know that. kay nunes
my lette is there also
kay@coopsweb.com

Sundanceh's picture
Sundanceh
Posts: 4266
Joined: Jun 2009

Hi, Kay

I had metastatic colon cancer to the liver.

I was on Oxaliplatin (platinum based 3rd generation chemo) and also was on Avastin at the same time. Also did the Xeloda pills with varying cycles due to the toxicity.

Interesting why he will not give you chemo. Avastin and Oxaliplatin make a pretty good one-two punch. And he could have you taking Xeloda too.

Check in with him, if he does not agree - seek a 2nd opionion.

I'm 5-years into my fight at only 47 - we're investigating 2 spots on the pleura of my lung right now.

Hope this helps some...Craig

elainey7
Posts: 11
Joined: Jun 2009

Thanks for being a SURVIVOR of this awful disease. I just got diagnosed and my oncologist were not proactive enough to catch it before my Stage IIIA breast cancer spread to my liver. Long story but basically my markers were up, I was in pain, and after all my complaining I finally got a PET/CT scan over a year after my initial treatment started.

I depend on a Mighty and Wonderful Savior and Healer, Jesus Christ to get me through this. Also, I increased my raw fruits/veggies and did a detox using epsom salt, fresh lemon juice, and olive oil. My BP has dropped, my pain level is gone, and I sleep a lot better now.

There's a website www.healingcancernaturally.com that is AWESOME and worth checking out in your spare time.

I am so very thankful that you are here to encourage us who are new to this or struggling when all we see on the Internet are the negative stuff out there about our condition. Keep fighting and hold on because God is able to heal when man (doctors )reaches his limit.

I am praying for you and everyone else out there battling this disease called cancer. Don't you ever, ever, ever, never give up... (:> Ellen Elaine

Sundanceh's picture
Sundanceh
Posts: 4266
Joined: Jun 2009

Thank you, Ellen
You are so sweet and your words have touched my heart and gave me a warm feeling that words can hardly express!

Click on my name of this post and you can read what I've been through - it's been challenging to be sure. I'm so glad that I was able to be of some kind of help to you. That's what I'm trying to do is help people with what I've learned and been through.

Let me know if you have any questions. I post out on the colorectal board as well.

We're looking at spots on the lung now, which concerns me, but we're seeing what the new doctor comes back with and then go from there.

Thanks so much for brightening up my day - it's people like you and your responses that make it all worthwhile.

All the best - Craig

jkabk1980
Posts: 2
Joined: Aug 2009

Hello. I am a sister of an active duty airforce (36). He was assigned to Iraq in May 08.
He returned in Aug 08 with Paranasal sinus cancer (head & neck). He started out at stage
IV. After extensive radiation and cancer treatment for 8 months, in Washington D.C.,
everything looked good and the cancer seems to have gone away. In May, he had is PET scan
and was told that the cancer at met to the liver. He had most of his liver removed about
six weeks ago. Two days before his surgery to remove the effected areas of the liver,
his wife (34) was diagnosed with stomach cancer. We were blowed away. A week after my
brother's surgery, she was operated on to remove part of her stomach. Surgery for both
of them were good. So, we thought. My sister-in-law is having severe pains in her
stomach and back. She can not stand straigt, can't eat, can't diegest and basically the
entire system is not working properly. The doctors don't seem to know why she is in so
much pain. They haven't directed her what diet and how to get enough nutrients in her
body. She is weighting less than a 100 lbs. The surgery for her seems to have gone well
but, why can't she eat ad process food so that she can heal? She starts her radiation
tomorrow.
Yesterday, got a call from my sister in law that new cancer has been detected in the
remaining liver for my brother. They opted to post pond his treatment until she was done with her radiation due to their kids. Time is not on our side. I am taking their two kids (2 &5) with me over 5thousand miles away so that my brother and sister in law can get their treatment ASAP.
It's getting over whelming for our family to say the least.

We don't know what to expect and how he will do? Faith is getting weaker and our
resources to support are getting weaker as the cancer gets stronger.

How do we handle this? It's so hard to watch them go through this and I can't fix it.
Once I leave with the kids tomorrow, they won't see their parents for a month or more
if everything goes well. My brother and sister in law will be on their own to fight this.
They have no support where they are and we are too far away. We are hoping for a miracle
to help them.

If there is anyone with any advise or suggestion or even anything. Please let me know.
God Bless you all.

Jen

hopefulone
Posts: 1048
Joined: Jan 2007

Hi. If there are MANY tumors throughout the liver , Theraspheres for the liver may be an option. Also known as SirSpheres and Ytrium 90 . Do a search for clinical trials in your state. Check with interventional radiologists at hospitals also to see if it's performed near you. If you haven't done so already, get second and third opinions. Whatever it takes, but do not stop investigating options! Finding an aggressive doctor can make a huge difference in treatment options. God Bless, Diane

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