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oliodendroglioma

satveer
Posts: 5
Joined: Aug 2007

My husband, 38yrs old, had a grade II oliodendroglioma removed in May. It was a complete resection but we have been told that the tumour will come back and could be more aggressive. No chemo or radio prescribed for now, just 3 month mri scans. Has anyone else had a similar experience - ie no further treatment, just keeping an eye on things? The tumour was about 2 inches in diameter, in the front right lobe of his brain (incidentally the side that he put his mobile phone to for about 3 hours on average per day prior to his diagnosis).

mark7
Posts: 23
Joined: Apr 2005

satveer.hi i am 55yrs old i have been battling oligo for almost 15yrs i think mine was a 3 or 4th stage oligo after my first surgery i got 20 treatments of rads. i think mine was a 4cm size they surgically removed it.i also get watched evry 3mths.i got it 2 other times but it was a low-grade.they just keep watching it.mine was also on the right side.hit in search mark7 in expressions for oligo i should be there if not e-mail me and i will help you if i can. just keep faith day to day keep me posted.god bless.

mark7
Posts: 23
Joined: Apr 2005

this is mark7 again the link that you click on is personal web pages then in search type mark7. thanks

satveer
Posts: 5
Joined: Aug 2007

Mark7, now I have the correct message response! only my second time on this two way message thing - it's amazing. thanks for your response, it is a great help.

satveer
Posts: 5
Joined: Aug 2007

for all those who may be reading this to find out more about oliodendroglioma progression, my husband has just had really good news. Last two scans there was some highlighted areas - the Doctors don't know if it's recurrent tumour or scar tissue. They now think it's the latter as it has not grown and in January we were told not to come back for another year! Great news for us for the moment (I think) but we're still a bit wary. In the meantime his tiredness post op has greatly improved to the extent that he can get away most days without an afternoon nap.

ChristyM
Posts: 38
Joined: Jun 2008

It is always awesome to hear good news!!! I hope it keeps coming!

satveer
Posts: 5
Joined: Aug 2007

Hubby is doing well, obvious personality changes - he's a changed man in some respects but he is so well now. I hope that this gives you all hope, we are so thankful to Kevin O'Neil and his team at Charing Cross Hospital - they are incredible!

chaffinsmom
Posts: 4
Joined: Jul 2008

So glad for your husband's positive report. My son was also treated for an oliodendroglioma four years ago, and the only treatment he received was surgery. There are also some highlighted areas. We are still going every 6 months for an mri (which he hates). The personality changes are there, of course, and he has recently suffered a bout of depression. But at least he is here, and I am praying for a cure or at least no return for now!

j_waffles
Posts: 22
Joined: Jun 2010

Hi,

Good to hear your husband is doing well. I was also diagnosed with a Grade II Oligo, about the size of a small orange, and I too didn't receive any additional treatment after my resection in January of 2009. However, just this month I started Temodar as I switched to a different neuro doc who told me it was growing. I've been stable this whole time, apart from a couple of partial seizures. The Temodar is annoying, though. I hope it doesn't mess with my wanting to have children later (I'm 27)

Mine's located in the right parietal lobe... and I too used the cell phone mostly on that side. Weird how that works.

J

39 yr old husba...
Posts: 1
Joined: Jun 2010

wow ive just been told i have a low grade glioma and was reading these and ive been wearing bluetooth headphone 3to 4 hrs a day wow it makes me wonder why they stopped the warnings about cell phones.. how is your husband. i have surgery on july 7th wish me well

falcon69
Posts: 25
Joined: Feb 2012

Hi satveer, I just found your post today and I realize it was 5 years ago and perhaps you don't check CSN anymore, but just in case...........My son,31 years old, had a gr 2 oligodendrglioma well over 80% resected in Dec. 2011. He had no deficits at all post surgery. The oncologist is monitoring it at 3 month intervals and doing no other intervention at this time. He said it is very slow growing and nothing would be gained by treating it now. He said it may make for a longer progression free time, but not a longer overall survival time. In fact he told us if treated now it may be more difficult to treat when it would come back again. Seems that the treatment for this type of tumor is not really set in stone as it is for more aggressive tumors. My daughter is a physician and an oncologist friend of hers said that this is the trend now for treating these low grade tumors. We have complete faith in our son's doctors. He is being treated at a major medical/teaching center in St. Louis. I would love to hear how your husband is doing now.

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