Aug 16, 2007 - 3:00 am
i'm new to this discussion group, but not new to CSN (I've been posting in the lung cancer group). Right now my family is going through a really tough time and when I saw the "caregiver" discussion group, i knew I needed to connect with you because you're the ones who really know what we're going through.
my mom was diagnosed with non-small cell lung cancer on sept. 15/06 with mets to her bones and lymph nodes. she started treatment with Tarceva on nov. 1st. she's been doing great until a recent trip to asia where she started experiencing pain and when we got back (we're from Vancouver), docs found more cancer on her pelvic bones so she was put on radiation asap. blood thinners were also started because of blood clots that she's formed from our trip. the radiation was harsh on her, although she's only had 10 treatments (5 on abdominal area and 10 on pelvic area), she suffered severe diarrhea. til this day she has to go almost every hour (but still an improvement from her previous 15-minute trips to the washroom). The sideeffects of diarrhea are taking a major toll on her and making her very weak. she is now mostly lying in bed all day, only getting up to go to the bathroom. she now needs help with most things, like showering. It's just so disheartening when you see her from being "alright", to being weak and helpless. She's even formed some bed sores due to lying down so much (also her skin around her back is super sensitive due to radiation).
I'm 19 (3rd year university) and an only child. other than my dad, the rest of my family is back in asia. it's so hard to have to deal with something as major as this without having someone to REALLY lean on to. honestly, prayers and my relationship with Christ are the major things that wakes me up every morning. I'm sorry i'm blabbering here but it's just been a little much to bear and it all had to come out of me somehow.
i want you to know that you all are in my prayers even though we don't know each other. but you guys have a pretty good idea of what it's like to go through being a caregiver for someone dear to you. and because we share this pain I share my prayers and blessings with you.