Aug 05, 2007 - 10:00 am
Hello, and welcome to our forum. I started a thread here, so that you would be able to spot it easier and read your responses.
You sound so bewildered, concerned and frustrated, what most of us in this position feel from time to time. But I believe you will get a lot of help, suggestions and support here, especially important since it sounds as though you haven't gotten much of it already.
Is your doctor a gynecologic/oncologist? Most often that is especially helpful. Do you have any family support? Friends may come and go, and find it easier to step aside during situations they fear or dont understand, but usually we can count on family to be there for us. Check out any support groups in your area (what state do you live in?). Your doctor may be able to help you on that. Since you have a computer, you can also do a 'google' search for 'ovarian cancer support groups in (your state)'.
What stage is your disease? PET scans are helpful, so it's a good thing they are going to have you get one. Have they talked about treatment of any kind? Have you had any treatment already?
It doesn't help that you have this burden regarding concerns about losing your job and insurance. Can you speak to your supervisor one-on-one and try to see if he/she will work with you on lost time, etc.? Explain to them how critical it is to have health insurance (people get sick, that's what insurance is for).
Are you married? Have children? Try to get copies of all of your reports. It's good for your information, and you will have them handy if you need to follow-up with another doctor.
Many cancers can exhibit themselves elsewhere, such as the lungs, but it doesn't necessarily mean it IS cancer. Have you had a CA125 blood test routinely or recently? Are they keeping a check on that.
I'm sorry to hear you are going through this. But maybe some of my suggestions will help. I'm sure others will answer you as well. In the meantime, try to just take one day at a time. Don't reserach the disease too much right now, until you know your specific situation. Although being informed is a good thing, overdoing it can get very overwhelming for some people.
I will pray for answers, health and strength for you. We all love to send hugs to everyone here, so I will be sending some your way. Please keep in touch and let us know how you are doing.