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Clear Cell Sarcoma of the Kidney

babylex
Posts: 2
Joined: Jul 2007

Hi - my 3 year old niece was just diagnosed with clear cell sarcoma of the kidney and I am trying to see if there are any others that have a child with this form of cancer. Any response with some information would be greatly appreciated.

gloria.jones's picture
gloria.jones
Posts: 2
Joined: Jan 2013

My three year old has clear cell sarcoma too.  And I am also desparately searching for the few others out there who are dealing with this.  Please let me know if your neice is doing well now.  I realize this post is quite dated.  Lots of love to you and yours, Gloria

Summerwend
Posts: 1
Joined: Jul 2013

Our little girl who just turned two is also struggling with CCSK and was diagoosed stage IV two months ago. We have been through so much since then and would really love to meet others that are trying to find thrim way thru this rare disease.

wendy

CarrieR
Posts: 6
Joined: Sep 2012

I would like to talk to other parents/relatives who have experience with CCSK.

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