CSN Login
Members Online: 16

BAD CRAMPING no surgery stage 4 colon cancer

wanda23's picture
wanda23
Posts: 63
Joined: Jul 2007

My mom was diagnosed in Oct 2007 with stage 4 colon cancer with mets to liver, they would not operate becuz it already had spread to liver with lots of tumors on the liver, she is getting chemo its been about 6 months of it, but cat scan shows she is not responding to it, so her oncologist is going to lower her chemo dosage. She gets really bad cramping and takes pain killers to try and help the pain, any advice or similar situations? her liver is really enlarged also....

thanks
wanda

KathiM's picture
KathiM
Posts: 7878
Joined: Aug 2005

please don't laugh...does she eat dairy? I run into more people that cut out dairy, the cramping reduces...something with the chemo and lactose....

I remain lactose intollerant to this day, 2 years post crc chemo...

Hugs, Kathi

wanda23's picture
wanda23
Posts: 63
Joined: Jul 2007

not that much, it just seems like what ever she eats, could it be because they wont do surgery to get rid of the cancer in the colon? she eats porridge and milk in the mornings alot, and drinks tea or coffee once aday and takes an Ensure drink, it takes the good out of her she just lies on the bed most of the time because of the pain... did anyone here of Ambrotose by mannatech?

Monicaemilia's picture
Monicaemilia
Posts: 456
Joined: Nov 2006

If the chemo is not working, are they not considering a different cocktail rather than just lowering the dosage? Monica

wanda23's picture
wanda23
Posts: 63
Joined: Jul 2007

not really sure what you mean? that is all the oncologist said lowering it? what other methods are there? Sooooo glad I found and joined this.

God Bless All

wanda23's picture
wanda23
Posts: 63
Joined: Jul 2007

not really sure what you mean? that is all the oncologist said lowering it? what other methods are there? Sooooo glad I found and joined this.

God Bless All

lfondots63's picture
lfondots63
Posts: 823
Joined: Jan 2006

Hi Wanda,

I guess the question is why the onc is lowering it? Is it to see if it helps the cramping? Usually if a chemo is not working they change the "cocktail" not lower the dosage. I think your mom needs to find out why this is being done. Maybe have someone else with her to remember to ask more questions. I know with my dad when he was dx he would never ask questions. I would ask some very logical questions and he would say "I don't know, didn't ask". Frustrating. Another thing is to write questions down. I actually typed up questions with room to put the answers. Please tell us how it goes.

Lisa F.

apache4's picture
apache4
Posts: 273
Joined: Jul 2007

I can't believe they are not removing the cancer from the colon. I have Stage IV with so many tumors in the liver that they can't even count them. I had the tumor and 18 inches of colon removed as soon as they could do it. How old is she? I am 63. Does she have other health problems that would compromise a surgery? I would get a second opinion. I have been on chemo for a year and doing well. The tumors in my liver have shrunk and stablized and I have a CT sccan every three months. I will continue chemo for a long time, but I am happy to even with the discomfort. I have had 15 treatments so far. Keep us updated on your Mom..I will be praying for both of you.

wanda23's picture
wanda23
Posts: 63
Joined: Jul 2007

Well I think I will give the oncologist a call today, the surgeon that was going to do the surgery in the beginning is the one that told us she is not going to have surgery. My mom is 63yrs old and the chemo is not working at all (6 months of it once every 2 weeks.

Thanks All
Wanda

TMG73
Posts: 1
Joined: Jan 2014

I just found out in oct I have stage 4 colon cancer it has spread to my lymph nodes and spots on my bladder and tumor in my liver my doctor said we should do chemo first and shrink it. I am 53 healthy can anyone tell me what to expect I'm on my second dose of chemo treatment

Trubrit's picture
Trubrit
Posts: 1418
Joined: Jan 2013

TM, I have sent you a personal message. 

We all look forward to seeing you post a new thread here on the forum so that we can get to know you and help you as you walk this cancer journey. 

thxmiker's picture
thxmiker
Posts: 1214
Joined: Oct 2010

Which Chemo cocktail are you going to take/ or are taking?   They each have different reactions.    Do you know hte location of the tumors/ or mets?   What typpe of cancer?

 

 

We are sending our thoughts and prayers for a positive outcome!

 

Best Always,  mike

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

that is not attached to this message from 2007. I think folks might be confused and may not respond to a message that is from seven years ago.  I'll send you a message explaining how.  I see you are new and sometimes it takes a bit to get the hang of things.

Peace. ~ Cynthia

rlridings's picture
rlridings
Posts: 43
Joined: Nov 2011

it works great w cramping

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

the original poster has not been online since 2008  ... it is unfortunately a very old post that was brought forward.

I understand it is hard to know sometimes because is easy to not notice the original post date. Your effort of help was kind ... But, in this case it will likely not reach the original poster.

Join in on some current posts though; the more voices we have to help one another the better.

Peace. ~ Cynthia

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network