post bilateral mastectomy swelling and pain

waquin
waquin Member Posts: 1
edited March 2014 in Breast Cancer #1
I had a bilateral mastectomy, April 11th,'07. and
had the drains removed 9 days after surgery and now have hard swelling below my incisions and over under my armpits, which are painful. I had fluid aspirated from
my left side and the Dr. said the swelling is normal. I have huge folds of skin below my incisions which are swollen and hard.
I was not bound during surgery. Is there some type of binder I can wear to minimize swelling?
Thanks in advance for any suggestions.
God Bless.

Comments

  • KathiM
    KathiM Member Posts: 8,028 Member
    My girlfriend (who I saw yesterday...she looks TERRIFIC!) had a bilateral mastectomy 5 years ago...she found some VERY wide elastic bandage that she wrapped her chest with. BUT, this was with the approval of her surgeon...
    Healing takes time. I know, easy to say....I STILL have tender places from my LUMPectomy over a year ago. My mom, a single mastectomy survivor, has hard 'bumps' here and there, 4 years later, and still gets 'twinges'. My onc said it well when I was complaining about my pain in my shoulder from the lymph node removal..."Don't use it, you'll lose it...healing in this part of the body is by contraction...you will have less and less use if you don't exercise".

    Ask your surgeon when and what you can exercise with....

    Hugs, Kathi
  • cabbott
    cabbott Member Posts: 1,039 Member
    KathiM said:

    My girlfriend (who I saw yesterday...she looks TERRIFIC!) had a bilateral mastectomy 5 years ago...she found some VERY wide elastic bandage that she wrapped her chest with. BUT, this was with the approval of her surgeon...
    Healing takes time. I know, easy to say....I STILL have tender places from my LUMPectomy over a year ago. My mom, a single mastectomy survivor, has hard 'bumps' here and there, 4 years later, and still gets 'twinges'. My onc said it well when I was complaining about my pain in my shoulder from the lymph node removal..."Don't use it, you'll lose it...healing in this part of the body is by contraction...you will have less and less use if you don't exercise".

    Ask your surgeon when and what you can exercise with....

    Hugs, Kathi

    Definately check with your surgeon. Mine said that some swelling is normal and will go away in time. He hesitated to drain because of the chance of infection, but he also said that it was sometimes necessary, sometimes more than once. He also believes strongly in exercise, but he cautioned to take it easy. They gave me set exercises to do twice a day starting 24 hours after surgery. All of them were easy stretches and took about twenty to thirty minutes to complete each time I did them. The exercise helps the body with drainage as well as prevent contractures (sp? I mean muscle tightness). It also helped me feel back to normal though the exercises were a far cry from what I was used to doing days before. It took over a month before I way back to carrying jugs of milk or the laundry basket, but everything did come back in time. Different mastectomies look different afterward. Sometimes the surgeon does a skin-sparing operation so reconstruction is easier. I didn't want that and requested that the surgeon make mine "neat". He still left some skin folds that I wasn't so happy with. But eventually most of the swelling went down, I'd say, in about two months time. The funny and not so funny feelings took more like three months to quit bothering me. Even now at almost 5 years, I sometimes feel like something is pinching my breast even though it's not there!!! Good luck and prayers your way!
  • I too had bilateral mastectomy 2002 following recurrence after a lumpectomey, chemo and radiation. Healthy now:) Check with your surgeon. I wore drains for a week which helped reduce the swelling. I also did stretching exercises taught to me by my American Cancer Society Reach to Recovery volunteer. I did not experience the hard swellings you are having, so again would just say keep in touch with your surgeon. Good luck and God Bless
  • jackiemanz
    jackiemanz Member Posts: 85
    I too just had a bilateral(March 20'07). My plastic surgeon just gave me a band to wear to help with the swelling and to also help get my implants to drop. He also gave me some excerises to do. I would ask about the band it's uncomfortable to wear but it works.
  • msphil
    msphil Member Posts: 9

    I too just had a bilateral(March 20'07). My plastic surgeon just gave me a band to wear to help with the swelling and to also help get my implants to drop. He also gave me some excerises to do. I would ask about the band it's uncomfortable to wear but it works.

    Hello sweetie, I didn,t have bilateral mastectomy but I just wanted to tell of what did happen to me. I had reconstruction right after mastectomy (L) but weeks later my body rejected it and it became very, very hard and painful, it was immediately removed after only a few weeks,. I just wanted to let U know U are in my prayers, in fact U ALL are in my prayers, God Bless. msphil
  • ireneingeorgia
    ireneingeorgia Member Posts: 73
    Hi. I just want to tell you that I had a right side mastectomy and implant at the same time; however, the cosmetic surgeon put me in a bra type garment for a week that was too tight. I don't want to scare you, but I want to make sure you do everything with a doctor's permission. I wound up getting necrosis of the breast (all the breast tissue died, leading me to have multiple other surgeries, moving back muscle to the front to rebuild. So don't wrap anything unless your doctor and you go over it first.
    xoxoxo
    Irene
  • spicedwafer
    spicedwafer Member Posts: 1

    Hi. I just want to tell you that I had a right side mastectomy and implant at the same time; however, the cosmetic surgeon put me in a bra type garment for a week that was too tight. I don't want to scare you, but I want to make sure you do everything with a doctor's permission. I wound up getting necrosis of the breast (all the breast tissue died, leading me to have multiple other surgeries, moving back muscle to the front to rebuild. So don't wrap anything unless your doctor and you go over it first.
    xoxoxo
    Irene

    First time on this site, so don't know how it works. I was wondering how your healing went. I just had right side mastectomy with immediate reconstruction with a latissum dorsi flap which is what I think you were describing when you state "moving back muscle to the front to rebuild". I regret volunteering to have this done as I can't raise of arm very well nor am I enjoying the discomfort to my back. The Doctor keeps telling me to be patient but I'm not so sure. I am due to start my chemo in 2 weeks and hope I am healed enough to tolerate. Please let me know how you have made out since it has been almost a year ago for you. Thank you in advance for sharing whatever you can with me. Thanks. Betty