Apr 09, 2007 - 11:00 pm
I wrote last spring about my mother, who had stage IC grade 2/3, complete hysterectomy in June and pelvic radiation (both external and brachy) from August to Sept. Doctors at Mass General gave a 6% risk of recurrence following radiation.
She was feeling good through the fall, though in January started having GI discomfort. I wrote here again to ask about that, and shortly afterward we discovered metastatic spread in the abdominal cavity, mostly on (not in) the liver. This shocked the doctors as much as, if not more than, us.
She started chemo immediately, and is going in for treatment 3 this week (of 6). I believe it's carboplatin and taxol. She's feeling much better, but for fatigue, and carrying on her normal life more or less.
I know recurrence is not good, and tumors on the liver are especially not good. There's no way around that, and we're all still coming to terms with it. I guess I'm writing here to see if anyone can tell me if they know of people who have lived with recurrent endometrial cancer for any length of time. Right now I'm feeling pretty despairing, even though I put on a good face when I'm home. Despite choosing not to hear about averages, my mother has the feeling that she probably has a couple years at best. I don't know if this is true, maybe it is. But it would be nice to feel like it could be longer, and maybe even a good deal longer. Is that miracle territory? Maybe no one here has answers, but it helps me to write and to know you're here anyway.
So, thank you.