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Primitive neuro-ectodermal tumor



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mary.pet

				          
            Posts: 2

          
          
            Joined: Feb 2007

          
        					
				
		
									

        			    February 1, 2007 - 4:11pm			  			

			
			
Has anyone heard of an adult having this brain tumor?


‹ my first seizure was yesterday had a siezure friday P.M. ›

						
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arkansasbrains

				      
	        Posts: 40

	      
	      
	        Joined: Oct 2009

	      
	    				
		
			
October 31, 2009 - 3:30am

			
my husband is 29, and was
			
my husband is 29, and was just diagnosed last month with a pnet. he's having radiation now. 



			
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LadyLynn

				      
	        Posts: 2

	      
	      
	        Joined: Jun 2011

	      
	    				
		
			
June 9, 2011 - 12:08pm

			
Husband just turned 49
			
Scott was diagnosed back in April, but all information has been vague.  His brain biopsy was two weeks ago and we are still waiting for the pathology to confirm specifics and begin chemo or radiation therapy.  I have been trying to find any information I can on adult PNET with no results until I found this.  I will share with you what I find as I continue to look for additional information.  Blessings to you and yours.  las



			
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jrcullina

				      
	        Posts: 1

	      
	      
	        Joined: Jun 2011

	      
	    				
		
			
June 13, 2011 - 8:43pm

			
PNET
			
My husband has PNET - diagnosed 6 years ago - surgery, spine and brain radiation and chemo and then 4 years cancer free.  It returned over a year ago and he had surgery and then high risk stem cell rescue therapy.  It has been a year and he is doing really well.  I can provide you all type of info but I know depending on the amount of resection and the doctors treating you everything is a little different!



			
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suemcpeek

				      
	        Posts: 1

	      
	      
	        Joined: Jun 2011

	      
	    				
		
			
June 16, 2011 - 11:19pm

			
My thoughts are with you and
			
My thoughts are with you and your husband. Keep a positive attitude. I am a 10 year survivor after being diagnosed with a PNET tumor when I was 26 weeks pregnant with my daughter. I had chemo and surgery and I appreciate every day. 


Sue



			
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