Hello. My mom was diagnosed with glioblastoma malforme 11 days ago. My entire family is distraught and lost. The initial pathology report said it is in Stage IV, and we're still waiting on the final pathology report, due back today. My mom had surgery last Thursday (a week ago) and the neurosurgeon removed all of the tumor (as far as he can tell). My mom is only 56 years old and the picture of health. She is small ( 5'2, 107 lbs) and bouncy and energetic. She watches what she eats and exercises daily. She had absolutly no symptoms until a series of seizures Saturday night while sleeping. Thank goodness her husband was there and called 911 immediately and she was rushed to the hospital. She went thru the typical series of tests: CAT scans, MRI's, EEG's, etc. The doctor suspected a GBM Stage IV immediately, based upon the shape, texture, ring around it, hole in center, etc.
I am devastated by this news. I am completely beside myself with worry, concern, and grief. I am looking for someone(s) who have been thru this and help me cope, or we can help each other. I would like to know how to talk to her about this. We have a very open relationship; she is my best friend. Her husband has told my brother and me that she knows everything - the good, the bad, and the ugly. However, she is talking about living another 10-20 years. From what the doctors have said and what I've read on the web, I understand that she has a maximum of 3 years or so, if she's a Medical Miracle. She also did not know until yesterday that it was considered a stage IV. I'm not sure if she heard it in her medicated fog and doesn't remember, or if she has not allowed herself to retain the negative facts, or if she had not indeed been told! I'm not sure how to handle it. I want her to know what she's facing, without destroying her positive outlook.
I would appreciate anyone responding who has some good news, fresh ideas, or suggestions. I'm totally grasping at straws right now, and I need someone who's gone thru this too.