Nov 02, 2006 - 8:24 pm
I was diagnosed with hyperplasia and low grade endometrial cancer in Aug. of 2000. I was 28 years old. It was discovered because my husband and I wanted children and I was having a hard time conceiving. I was also diagnosed with PCOS. I was referred to one of the top hospitals and had the head of the gynecological cancer group. They were great!!! Because I wanted to have children, and they felt they had caught it VERY early, they put me on high doses of a drug called Megace and every three months performed a D&C. The first round cleared out the cancer but the hyperplasia was still present. The second round showed a decrease in the hyperplasia, but still present. I was told they had never had anyone go on to a round three, but we were going in the right direction so we kept going. I went through round three and the D&C came back clear. Nov. 3rd, 2000 is the day I was told I was cancer free and tomorrow it will be 6 years. My daughter will be 5 in Dec. and my son just turned 3. They are my life! After I was declared cancer free, I was told I would have a very hard time having kids and I should consider adoption. Four months later I was pregnant with my daughter. I was told that I was very lucky and I would have problems if I wanted any more. Shortly after my daughters first birthday I found out I was pregnant with my son. I was told they were writing papers about me at Harvard Medical School. My oncologist told me my cancer was cured and not to worry about it anymore unless my cycles became abnormal and I should stay on the pill until after menopause - that has a lot to do with my PCOS. My other doctor wanted me to have biopsies periodically so I did for a while and everything came back clear. Now I'm approaching six years tomorrow and I approach it with trepidation. I'm so pleased that I have made it six years and I'm so scared that I will hear those words again. I had no abnormal symptoms besides the fact that my period would only show up every three months or so. I never went longer than three months between cycles. I'm very regular now. I guess I read the stories of woman that have had hysterectomies and it's in the back of my head that mine could always come back because I didn't go that route. When I went through treatment in 2000, I was told that I was only the 13th person my oncologist had ever treated this way, but he felt I was a perfect candidate or he would have recommended a hysterectomy. I also had other opinions that felt I was a good candidate for this treatment. I did ask if I should consider a hysterectomy after I was done having children and was told no unless my cycles became irregular again or other symptoms appeared. My oncologist is very well respected in his circles and was a GREAT Dr. I'm curious if there are any other woman out there that have any similar experience and how they feel as time goes on. Thanks!