Sep 30, 2006 - 10:35 pm
Hi everyone...I am back for more support..Just a refresher..I was diagnosed in Aug '05...After surgery, did 6 rounds of Carboplatin and Taxotere. Finished 1/30/06...CA125 was down to 7.8....Got a call from my oncologist, in May, that my numbers started to go up...After CAT scan, more tests, meeting with another specialist, it was decided to try TOPOTECAN for 6 months. Started this on 6/30. At this point my CA125 was 247. I had this chemo once a week for 3 weeks and then 1 week off. CA125 was coming down very slowly. Started my 4th round when the doctor told me it wasn't working and that my CA125 had started going back up and was now at 211. Now he wants to put me on DOXIL (doxorubicin hydrochloride lipsome). Have to go for a CAT scan and a MUGA scan on 10/5. (MUGA scan is being done because this type of chemo can damage the heart). Is there anyone out there that has had this kind of chemo? Can you tell me what side effects you have experienced? I lost all of my hair with the first round but was lucky with the TOPOTECAN. What started to grow back after the first round continued to grow during the topotecan treatments!!..I have been pretty lucky with the nausea but have had a hard time with fatigue and bone pain from Nuelasta shots. Any info you can give me would be great. I am having a real hard time dealing with all of this. I am in fear that I will never be in any kind of remission. Thanks in advance for your help!