Sep 23, 2006 - 12:49 pm
I'm a 41-year old mother of four just diagnosed with a uterine neoplasm. I'm scheduled for an MRI next week to determine the extent of the disease and hopefully characterize it a bit better. This will be followed by hysterectomy.
The primary mass is in the posterior wall of my uterus in the myometrium - no clear borders and heterogeneous echogenicity. To better delineate it, my gynecologist did a sonohysterogram, which showed more bulging anteriorly and no margins. She looked a few times, so I doubt it was contractions - I suppose MR would be able to rule that out also if the masses disappear.
Has anyone here gone for hysterectomy to rule out adenomyoma and had it come back sarcoma? This is my greatest fear at this point and I really need support. Knowing others who've been through it would help!
I'm nervous about the hysterectomy since obviously I will be awaiting pathology for the day or two following surgery.
How do you cope with the waiting? If indeed it is malignant, I want to pursue a treatment that will keep me able to care for four kids - hubby is no domestic God...
Any advice or encouragement is appreciated!