Sep 12, 2006 - 9:24 pm
About a month ago, I went to the hospital for chest pain. On the x-ray, the doc noticed a nodule. CT scan confirmed and showed some baby nodules. After a fine needle aspiriation at one hospital, they diagnosed it as neuroendocrine carcinoma (a rare aggressive cancer). I went to MSK for a second opinion. They did a core biopsy. Pathologists are "100%" certain its NSCLC. Pet scan shows bone metasteses to back and hip. I was generally asymptomatic before I went to the ER (moving heavy stuff, exercising, etc.).
I got carbo and etoposide when they thought it was neuroendocrine. Now it will likely be carbo, taxol and avastin. Interestingly, and maybe someone else has experienced the same, I had almost no bone pain prior to chemo. My back was a littly annoying, but I chalked it up to a bad nights sleep. Two days after my chemo stopped, my back pain went from 1 to 9. It was throbbing and borderline debilitating. Now two weeks post-chemo, the back pain has subsided mostly, but my chest (site of big tumor) and hip (hip, especially) are up to 8/9. I had NO pain in my hip prior to chemo. Now I limp, even on oxycontin.
I'd like to think that this is the cancer cells reacting to the chemo, preferably by cell death. My doc, who's not my favorite said its just cancer pain. I asked how it could go from a 1 to a 9 in a week which happened to be the same week i got the chemo. Then she started saying that the pain has been there all along and now I am just noticing it. Bull****. This pain is like YEEEAAAAOOOWWWW. It was not there.
Anyway, just like everybody else I guess: scared, confused and hopeful. The doctors say that lung cancer in a non-smoking 27 year old is unheard of. But then they make comments about survival. My response is this: if its so unheard of that a non-smoking 27 year old can get lung cancer, then why can't it be possible that I survive this cancer? Why can't the ****ty odds that worked against me, now work for me?
I am interested in supplements and diet, but my doc is dismissive. I've been reading some good books. I'd love to talk to some of you if its ok. Keep fighting and keep believing.