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possible reoccurance

cbosarge
Posts: 5
Joined: Aug 2006

I was diagnosed with Papillary Thyroid Cancer in January 2006. My cancer was found by accident on an MRI of the Cervical Spine. I went thru the ultrasound, small needle biopsy which came out negative. I just had a feeling I had cancer so I opted for surgery to remove the left thyroid. The pathology report showed cancer. Glad I had the surgery. One month later I went under again to remove the right thyroid. The right side was negative. I did loose one lymph node on the left side to cancer but that was it. The 2 surgeries have left me with hypoparathyroidism. This means my parathyroids no longer work, so I am calcium dependent. I take 8400 mg of OTC calcium and 4 prescription pills a day for my calcium and nothing seems to be working. At a lost for this condition. I then went thru the I-131 treatment. I just recently found out I received a large dosage because I had so much residual left. Shortly after this treatment my endocrinologist left state. I was left without one for 4 months. I just went to my new dr and he has discovered 5 small masses in my right neck area. I am fixing to start the low-iodine diet Sept 4th and start the thyrogen shots Sept 11th - 15th. I am very anxious and nervous about the shots. I do not know enough about them to know if they are effective. I am also very nervous because I have the same feeling I had last time, the feeling to knowing I have the cancer. I do not know what to expect as far as treatment goes and surgeries. I do know if it is back I am going to go to MD Anderson. I am in the medical field and I want the best to treat this if it is in the lymph nodes. I am very depressed because I have not felt good since the 2nd surgery and here we go again. I feel like I don't run my life my body does. I use to be a very energetic person, always on the go, but not anymore. I make myself get out of bed every day. If I didn't have to go to work I would probably never leave the house. Please help. Looking for answers or experiences like mine. I know I am not the only one out there with this.

human
Posts: 1
Joined: Sep 2006

First time here. I don't have cancer but have been touched by it vis a vis my family and friends. One thing I've learnt about cancer is that cancer cells LOVES sugar BUT HATES O.X.Y.G.E.N. Methinks the secret is OXYGEN. Majority of the people don't know how to breathe properly and take oxygen in.2nd wind?... THINK for a 2nd. How do athletes who have been injured, recoup so quickly? Lance Armstrong comes to mind and he is one who had cancer and how did he win, hmmm? Hyperbaric chambers, maybe? I suggest you google/search "Oxygen therapy" or similar words to it. And maybe get yourself an oxygen tank and get that extra oxygen into your bloodstream? You said you were tired - lethargic. In Canada oxygen is considered a drug, go figure...And one needs a pescription for it.

Also...ARM your IMMUNE system!! The Breuss Juice Diet is one of the . I've done it myself -- the 42 days -- I suggest you google/search "The Breuss Cancer Cure". The book costs about $11 and the Biotta Bruess Juice can be found at a health food store. In Canada it's about $5-$6 a bottle. Unless you want to make the juice yourself. www.curezone.com/diseases/cancer/breuss.asp

If you get that book, Dr. Breuss advocates having sage tea on a daily basis -- Get yourself some sage seeds or better sage plant -- plant it around your garden. Grows like a weed.

Listen...You'll be fine. Have a POSITIVE attitude, okay? I know it's easy for me to say that and hard for you to do. I accidentally came to your post vis a vis the search engine and saw that you were down and wanted someone to reply to your posts -- someone that was in a similar position as you. As you know, I'm not -- but am trying to help you with what I've learnt by the family members and friends who were battling cancer and who touched my life.

I forgot to add...Another thing you might want to take a look at? CELTIC Sea Salt. A lot of people are suffering from iodine deficiency?

Stay strong!! I'm certain others will reply to your posts also.

alliesnene's picture
alliesnene
Posts: 23
Joined: May 2005

Hi cbosarge,
let me start by saying that I have been fighting papillary carcinoma since '94. The first year is the worse! I had 5 neck surgeries my first year so I definitely understand what you are going through.
It takes about 1 year for the endocrinologist to get you on the proper dose of synthroid. Then, when you go off meds for RAI, it takes 2-3 months for the meds to kick back in. That feeling of no longer being in control, comes with this new territory you've entered. Depression is normal. I did thyrogen the last time I was able to do RAI, it was a blessing. No going hypo! So it's great you are going this route for your next scan. I have a few questions, what is your thyroglobulin level and what was the date of your last RAI treatment? I was told by my prev endo, (retired, was in charge of dept. at UCLA) that RAI has been proven to work in our bodies up to 1 year. If you like you can email me here, I correspond with several newly dx'd thycan's.
Take Care,
Jen

tcbuds
Posts: 4
Joined: Jul 2004

Dear cbosarge,

How are you doing? I read you message and felt so bad for you. I am so sorry that this has happened. I would highly agree with you about going to M D Andersen. Go there for sure!! Do not mess around with doctors who do not know wht is going on.....MDACC knows alot about ThyCa.

tcbuds

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