Aug 04, 2006 - 10:59 pm
I was diagnosed with Ovarian Cancer in Aug 2005. I had a total hysterectomy. Also had 49 lymph nodes removed. 24 had traces of cancer. My Ca125 was up around 4,000. NOT GOOD! I finished 6 rounds of Carboplatin and Taxotere on 1/30/06. My CA125 went down to 7.8. Went for my 3 month check up and CA125 went up. A month later it doubled. I had to go for CAT scan and appointment with specialist to see if surgery was recommended again. It was decided that I would hold off on another surgery and start a new round of Chemo. My Ca 125 was up to 247.4 before the new round started. I am now on Topotecan once a week for three straight weeks and then one week off. I will have to do this for 6 months. After finishing the first month my Ca125 is down to 187.4. There have been no major side effects accept for some tingling in my hands and feet. Would love to hear from others who have had similar treatments and or experiences. I am very nervous about the future! I don't get any emotional support at home but I think it is because I am always telling my husband and my children I am fine because I don't want them to worry. I have always been their rock and I don't want to let them down. But sometimes I feel that I just want to let my gaurd down and show them I really am not that strong. This is really tough. Any support would be greatly appreciated!