More 'bald head, big mouth' stuff

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KathiM
KathiM Member Posts: 8,028 Member
edited March 2014 in Colorectal Cancer #1
Thursday and Friday I went to an action conference to discuss crc screening and ways to implement low cost programs in California...my colon was invited, but, of course, my MOUTH worked, too....
My fav question (they got tired of it) was 'WHY are we waiting till 50 to VALIDATE the possibility of crc?' And, the 2006 colondar was there...sb, you are quite the hunk! I thought I was getting nowhere, and then a doc came up to me and said "You are the ones that have the power to convince people to change the rules...because you have first hand experience"
WOW, was I shocked!
AND, I met a gal that had the SAME 'RARE' cancer I did...we compared notes...and another doc had had 3 cases...all women...I suggested doing a paper or a study or whatever, and gave him my card...so maybe there IS hope...
Hugs, Kathi

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  • JADot
    JADot Member Posts: 709 Member
    #2
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    Kathi, you rock!

    Thanks for being an advocate! What you're doing can help lots of people live to see 50, ha, like me. I was dx'd at 39.

    So my big mouth is at your service. Who should I help nag at?

    Ying
  • lfondots63
    lfondots63 Member Posts: 818 Member
    #3
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    Hi Kathi,

    Me too. I would like to advocate early screening in PA. Maybe we can gather people in each state to start this. It should be nation wide. I was dx at 42. I wonder who we start with? Maybe the State reps in our area? If you find anything out, e-mail me. I'm good at pestering.

    Lisa
  • KathiM
    KathiM Member Posts: 8,028 Member
    #4
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    lfondots63 said:

    Hi Kathi,

    Me too. I would like to advocate early screening in PA. Maybe we can gather people in each state to start this. It should be nation wide. I was dx at 42. I wonder who we start with? Maybe the State reps in our area? If you find anything out, e-mail me. I'm good at pestering.

    Lisa

    I will, Lisa...I am learning fast...one organization that seems to be strongly in favor of grassroots advocacy (in simple terms, US) is the Colorectal Cancer Coalition (C3). I have joined, after talking with one of the speakers at this conference...They are the ones that publish the Colondar that SpongeBob is in, too. They are a little edgier than ACS, but obviously by their name, DEVOTED to colorectal cancer...I will share the info when I get it....
    Hugs, Kathi
  • cherriann
    cherriann Member Posts: 155 Member
    #5
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    me at 43. and my doc told me that i was very rare also. told me i was one of the unfortunate ones. but if we can change this maybe we can have less of these rare( ha ha ) cases. let me know if anyone has suggesstions of how to get the word out.
    cherri
  • KathiM
    KathiM Member Posts: 8,028 Member
    #6
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    KathiM said:

    I will, Lisa...I am learning fast...one organization that seems to be strongly in favor of grassroots advocacy (in simple terms, US) is the Colorectal Cancer Coalition (C3). I have joined, after talking with one of the speakers at this conference...They are the ones that publish the Colondar that SpongeBob is in, too. They are a little edgier than ACS, but obviously by their name, DEVOTED to colorectal cancer...I will share the info when I get it....
    Hugs, Kathi

    Sorry, they don't do the colondar...that's the alliance...just looking at the handsome man that's Mr. July again (hehehehehe).
    Hugs,Kathi
  • kangatoo
    kangatoo Member Posts: 2,105 Member
    #7
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    cherriann said:

    me at 43. and my doc told me that i was very rare also. told me i was one of the unfortunate ones. but if we can change this maybe we can have less of these rare( ha ha ) cases. let me know if anyone has suggesstions of how to get the word out.
    cherri

    Geeez Kathi...thar yah go mouthin off 'bout yah bald head again. Keep tryin to tell yah that "bald gals" are sexy but yah never listen to me!
    ps.....Jen's away at a conference so I can get away with lines like that tonight...lol! And good on yah for mouthing off for us semi-colons! huggs, Ross n Jen
  • Unknown
    Unknown
    #8
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