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Late Effects of my Treatments

renaekenzie
Posts: 2
Joined: May 2006

Hey! I am a 22F Wilms' Tumor survivor who had lung mets as well. I only had chest radiation, but I had chemo both times, including adriamycin. I just recently had to have surgery for a benign tumor in my uterus and an extensive problem with endometriosis. My doctors all made the comment that it is probably a result of all the treatments I had as a baby. I was wondering if there are any other women out there who had radiation/chemo as a young child, and if so have they had any problems with their reproductive systems which could be contributed to late effects. Any feedback would be great, thanks guys!

ALMS
Posts: 4
Joined: Mar 2004

Hi, I'm 46 and 30 years ago I had Ewings Sarcoma, a bone cancer. I'm starting to find out alot about late effects of treatment, since now I'm having weaking problems in my bone(leg) that was treated with radiation. I also had adriamycin and alot of other chemotherapy. I was lucky enough not to have any problems yet, and I have two children too, both are fine, although I waited a good twenty years to have them after my cancer, just to make sure. Best thing to do is talk to your doctor about all this, because new studies are showing the issues involved with late effects of chemo/radiation now that alot of us children survived childhood cancer. I'm glad to find out I'm not the only one, but best thing is to keep getting your check-ups, and live a good life. Remember, always try to think positive, we will all get through this.

lindazame
Posts: 46
Joined: Jan 2002

Check out this web site. http://www.cancersurvivorsproject.org/
It is a web site started by long term survivors of child/adolescent cancer. Lots of good information including a link to the long term survivors discussion group where there are a lot of survivors talking about similar issues.
Linda Zame

tracycairns
Posts: 1
Joined: Nov 2006

Hi, I had wilms tumor when I was 6 years old in 1983. I had my left kidney removed, chemo and radiation. My husband and I have just been in the process of starting Invitro Fertilization with an egg donor. Over the past couple of months, my fertility specialist has been trying to get my uterus to grow with the drugs Estrace and Provera. This past week, at our checkup he told us that my uterus was probably not going to grow because it was probably radiated. Do you know if your was? I am trying to figure out if that is a normal thing for a uterus to be radiated or if it something else to do with my uterus.
Hope this helps inform you a bit.
Thanks

lilbit63
Posts: 5
Joined: Dec 2007

hey, i dont know if you still check this but i've just found this site.
i, too am a wilms tumor survivor and have had many problems with female organs, back, etc, lots of wierd stuff no one seems to be able to explain

Sarahr19128
Posts: 1
Joined: May 2014

Hi there!

I was diagnosed with Wilms Tumor when I was 2 1/2 (1994). I received radiation and chemotherapy and had two surgeries to take out the tumor and my right kidney. I also had 20 lesions on my lungs so I received chest radiation as well. I am 22 years old now and thankfully cancer free. My doctors keep a close eye on me and I go for check ups very frequently. I had a spinal fusion for my scoliosis (resulting from the radiation) in 2011. I also had a thyroid lobectomy in 2013 (benign tumor). I have had a lot of ups and downs but I feel grateful that I haven't had a secondary cancer. My doctor wants me to see a fertility specialist to find out my chances of having kids. I know there is a huge chance I won't be able to (due to radaition and chemo) but I would like to know my odds. I'm not married or looking to have kids yet but its scary to think theres a chance I won;t be able to. I can understand what you went through, its a tough thing to come to terms with I think. I saw you posted this many years ago but If you are still on this site let me know I would love to chat!

 

Sarah

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