Association

charelaine
charelaine Member Posts: 36
edited March 2014 in Colorectal Cancer #1
I was wondering if any of you have associated things with your chemo to the point that thinking of those things can make you sick? I am finding that I am doing that a lot and I am trying not to, but I can't stop. Are there any tricks to stopping this sort of thing?
In case you don't understand what I mean, here are some examples.... After my first chemo we stopped to eat at Cracker Barrell. The food was great, and I did not get sick after that treatment. On the way to shop one day, we passed a different cracker Barrel, and I became physically sick to my stomach. I cannot say the name of the place without nausea. I do this every time we drive to Nashville, even if we aren't going to the doctor. On chemo days, I usually have left something in the crockpot so my mother can easily feed my children before I get home. Whatever food it is, I no longer can eat it. Even if I love it. Thinking of my doctor makes me sick, and I love him. And the week of chemo I have a hard time reading this board without being sick, no offense. I am not crazy, but I want this to stop. Tell me I am not weird. The thing is, it seems to be getting worse every time, and I thought it might let up. Of course, the chemo is getting worse every time too.Any suggestions would be great. Thanks.

Comments

  • spongebob
    spongebob Member Posts: 2,565 Member
    Thinking about my former girlfriend makes me nauseus! (of course, I suspect she'd say the same thing...)
    Seriously, though, about the only thing that makes me nauseus just thinking about it is Fleet's and Co-Lyte.

    As a Critical Incident Stress Management counselor for the Cost Guard, I know a lot of people who have that sort of response to various inoccuous things - especially things with an associated smell. You may just be very susceptible (spell check, please). The most important thing for you to keep in mind is that it is an absolutely normal response to an abnormal situation (being on chemo and the associated stresses involved).

    Something you might try - especially in situations where there is an associated smell - is taking either a strong mint or a lemon drop when you feel the nausea coming on. You might also try a form of bio-feedback wherein when you feel the nausea coming on you stop whatever it you are doing, massage the back of your neck and breathe deeply until you feel it pass. Do this every time. Eventually your body will start to react to just the touch of your hand and closing your eyes. You will "train" yourself to feel better.

    Some thoughts... nothing is an absolute panacea except for time (and sometimes even that doesn't fix it - as in the case with my former girlfriends!)

    Cheers

    - SpongeBob
  • spongebob
    spongebob Member Posts: 2,565 Member
    PS -

    Sometimes chemo can affect your vision, which might be an answer as to why reading the board makes you nauseus - if your eyes are not acting "normally", it can have a direct correlation with your balance sensors.

    Either that or you're getting nauseus reading Rodney and Kanga's jokes... That affliction strikes many of us, but we just chalk it up as a hazard of reading the board.

    - SB
  • charelaine
    charelaine Member Posts: 36
    spongebob said:

    PS -

    Sometimes chemo can affect your vision, which might be an answer as to why reading the board makes you nauseus - if your eyes are not acting "normally", it can have a direct correlation with your balance sensors.

    Either that or you're getting nauseus reading Rodney and Kanga's jokes... That affliction strikes many of us, but we just chalk it up as a hazard of reading the board.

    - SB

    Now that you mention it, my eyes do act funny after chemo. I have a hard focusing after chemo, and I can't watch TV much because it hurts to look at it. Never thought much about it though. Just thought it was because I was so bone tired. Anyway, glad to hear that you think it is normal. I was worried. Do other people do this from chemo though? I will try the trick to control the nausea. Anything to help. I just wonder if, after all this is said and done, all these weird symptoms will stop. I want to eat pot roast again!! Thanks for your help, Charlotte
  • lfondots63
    lfondots63 Member Posts: 818 Member
    Hi Charelaine,

    I agree with SB. It might be stress related too. You should talk to your onc. I was just saying to a friend I get anxious and feel sick when my next treatment is going to start. Maybe you need something to help the stress. I know for the food problem that I will be hungry for something and then when I get it the smell just makes me sick. Unfortunately I think this comes with the territory. I just had my 5th treatment and the symptoms are getting worse. Try to have easy foods in the house like pretzels to calm your stomach. Sometimes after you get some food in your stomach you are up to eating more. Don't let this get so bad that you are not eating or drinking. I can now understand how people get dehydrated and malnutritioned when doing chemo. Sometimes your will to eat is just null and you have to make yourself do it because you know you should. Take care and sending good vibes your way.

    Lisa
  • taraHK
    taraHK Member Posts: 1,952 Member
    I know what you are talking about. I had to stay in hospital for each round of chemo. After I couldn't tolerate the hospital food anymore, I was brought food from home. Some of those dishes I then couldn't tolerate -- for months. I was adviced (too late!) not to eat your favorite foods under these circumstances. I can now eat those foods, but it did take months. Also, I used to get 'anticipatory nausea' on my way to the hospital for the chemo -- the nausea started before the chemo did! I understand this is quite common. Anti-nausea medication can help. I understand anti-anxiety medication can also. I also started using a guided meditation CD, before I went to the hospital. good luck. You are not alone!
  • jsabol
    jsabol Member Posts: 1,145 Member
    Hi Charelaine,
    Boy, can I relate to your symptoms; I didn't think of posting the question at the time, so good for you! I have always been very sensitive to and aware of smells (sure makes being a nurse tough at times!).
    I used to get nauseous at the smell in the elevator on the way to chemo; luckily I changed to another (closer) office, so didn't have to deal with it for the entire 6 months. The branch office closed, however, and I will now have future followup appts back at the first place; makes me queasy just thinking about it! Sponge Bob sounds right on the money (he knows a lot about a lot of things!). If you can develop some self calming techniques, that should help. I tried both a relaxation tape/self guided imagery (your onc's office may know someone who teaches relaxation/self hypnosis) and I used a touch of Ativan before going to chemo (don't drive yourself if you choose to use meds to help). I think the important thing is to recognize that you are not too crazy or wierd and that you CAN learn ways to deal with it. (My grandma would advise "Don't work yourself into a state".) Sometimes just saying out loud that you expect that the trigger will make you nauseous may be enough to put your mind over matter. Using ginger can also be a natural way to combat nausea.
    I regularly get motion sick/nauseous from scrolling around on the computer, my eyes can't adjust. Try slowing down the speed at which you scroll around or switch screens and fiddle around with the contrast/brightness settings to find a less jarring combination.
    I like tyhe suggestion about not falling back on all your favorite foods; I sought out cream soda and pumpkin pie when I was on chemo; now I don't touch either!
    Lots of good comments here; hope they help break the anxiety cycles for you; keep us posted. Judy
  • JADot
    JADot Member Posts: 709 Member
    OMG Charelaine, you are not weird or crazy. I can relate 100% to everything you've said. In fact, I was talking to Lisa (Ifondots63) about this very topic this morning.

    I am hyper-sensitive to smells - the smell of the fanny pack for my 5FU makes me physically sick. So I don't use their bag any more. I now bring my own leather, non-smelly bag. When I am on the pump, looking at the thing is disturbing too, so I have to cover it under bed sheets or clothing.

    I do get sick just thinking about some stuff too - going to chemo, getting shots, getting blood drawn. Seeing bills and notes from my insurance company also make me all fluttery. Basically most things associated with my cancer treatment turns my stomach. My wonderful husband got me a new iPod so I can listen to music while I am on the drip. After having done so a few times I can't even face my iPod at home! eeek! Ditto with reading the board, which is why I haven't been here very often lately. (It's not because I've run out of tapeworm anecdotes :)

    Food - yup, some of the stuff I used to live on I can't even think about them now, especially the stuff I used to snack on during my treatment.

    I think I am losing my mind, and quite often the contents of my stomach :) I will need to find help to cope with my remaining 6 treatments.

    My husband said he's just glad that I am not doing chemo at home and that he won't go to the onc office with me. That way I can't associate him with barfy things :)

    Thanks SB, taraHK and Judiths for your tips! I wil have to try them because my situation is getting out of hand. I am scared to death that I will throw up upon entering my onc office next time. Almost did last time.

    JADot
  • nanuk
    nanuk Member Posts: 1,358 Member
    the mind is a powerful thing, and so is chemo..put them together, and you can get sick even years later by association. The feeling I get everytime I simply get near a cancer center is extremely depressing. That dejavu (SP) was revisited recently when at MD Anderson..(esp the small child patients )I can identify a cancer patient-(on chemo) by the blank stare, etc. The key is to disassociate..(easier said) but if you force the good thoughts and attitudes, the bad ones can't get in..once you reflect the positive,
    people will respond in kind.. Bud
  • KathiM
    KathiM Member Posts: 8,028 Member

    Now that you mention it, my eyes do act funny after chemo. I have a hard focusing after chemo, and I can't watch TV much because it hurts to look at it. Never thought much about it though. Just thought it was because I was so bone tired. Anyway, glad to hear that you think it is normal. I was worried. Do other people do this from chemo though? I will try the trick to control the nausea. Anything to help. I just wonder if, after all this is said and done, all these weird symptoms will stop. I want to eat pot roast again!! Thanks for your help, Charlotte

    Yes, my dear, I did this...chemo related...and it's better now that I've stopped. The only thing I still can't eat is chicken broth..but I think that's because it's so close to my Spring Cleaning friend Phospho-soda (What did they THINK it would do better to add ginger/lemon to salty stuff, I'll never know).
    Give yourself time, and half the battle is recognizing it for what it is...then working thru it...
    Hugs, Kathi
  • steved
    steved Member Posts: 834 Member
    No youaren't going crazy (a professional opinion!)- it is a well recognised component to all of this. Is called classical conditioning by psychologists and is due to associations. Similar to old Pavlov's dogs- food causes salivation so pair food and a bellringing and in time just the bell causes salivation. In our situation the chemo causes nausea and in time things associated with chemo- the place, the bloods, the trip there, teh food we ate before or during it get associated with nausea and can trigger that nausea themselves. it is simply our braining learning which is usually helpful (helps us to predict siutations in our life) but in this instance is counterproductive.
    RElaxation etc can be useful and is definitely worth trying as teh other cause in these circumstances is anxiety which makes teh association stronger. Meds have little role unless there is significant anxiety as a component eg you feel tense and get other physical symptoms- if this is the case prozac like drugs or intermittent use of sedatives can help (though never regular sedatives like ativan or diazepam). in time the association is unlearnt by 'extinction' and can be sped up by having exposure to the stimulus eg food/ place without the chemo. Trying not to develop the association in teh first place by not exposing oyurself to things you value while feeling nauseous with chemo is helpful.
    In my case was a bit of a nightmare as teh chemo clinic became a cause of nausea and I work in the bloody hospital! A year on now it has faded to almost nothing but I avoided that end of the hospital for a while.
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  • CAMaura
    CAMaura Member Posts: 719 Member
    Gosh, soup did it for me...could not think of having it for months. But, with a great soup (I am in the restaurant biz) the memories of junky soups during chemo fade quite eaily.
    Good things replace bad...just trust yourself and make an effort to understand yourself and all will work for you.
    It is the same with a former boyfriend - if one can even call it that...the junky one during chemo was quite pleasantly replaced...again, good trumps bad; but more importantly, all works out the way it should...
    Take care - Maura