CSN Login
Members Online: 20

Epitheliod Angiosarcom of the Liver

rodsangel
Posts: 6
Joined: May 2006

This is my first time here. What joy this has brought to me. I was beginning to feel so alone. I think that I have found some real peace here. I was diagnosed with Epitheliod Angiosarcoma of the liver. It was an accidental finding. I was not sick in any way. Just went in for a normal check up. My liver enzymes were a little high, so the search began. On Valentines Day this year, I was given my prognosis. I am in the final stage and there are only ten people in the United States with this illness. As far as I know, there are no experimental drugs or studies for this illness. I do not have alot of time, and The time I have left, I want to spend just living, and loving my family, and not in a hospital, or treatment center somewhere, so far from home. I don't ask why. I feel cheated somewhat, but I do thank God every morning when I wake up, that he has chosen to give me one more day. I am experiencing pain now, and nausea. My Oncologyst has me on eight hour Oxycodone. I have lost my appetitie, but do eat what I can tolerate. I tried to find information on other patients or family members who have this illness, but the stories I have read are so similar to mine. I am so glad to be here, you have no idea. I still feel I am dreaming, and need to wake up. This is truly unbelievable to myself, and my family. Please, if anyone has or knows someone who has my illness, I would appreciate very much if they could post something to me. Thanks for being here!

offutt9's picture
offutt9
Posts: 90
Joined: Jan 2004

Hello!! I know how you feel...This angiosarcoma is so rare....Thanks for emailing me. I have answered your email and hope to hear back from you soon..Take care for now, AND DON"T GIVE UP!!! You are in my prayers...Barbara

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network