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Pleomorphic Liposarcoma

Violets6242's picture
Violets6242
Posts: 4
Joined: Feb 2005

My husband who is now 64 yrs. was first diagnosed with 'pleomorphic liposarcoma' cancer in December 2003. He had it on his upper right back near the arm pit. He first noticed a very small lump on his back in Sept 2003. The VA doctor kept saying it was only a fatty tumor and do not worry about it. Well it kept growing and growing. He went back to the VA doctor and told them he didn't care if it was only a fatty tumor, he wanted it taken off. The first surgery was done Dec 19, 2003 and a biopsy was done. He went back to VA doctor a week later and was told it was Pleomorphic Liposarcoma cancer and that he did not get it all. This was all done at VA in Las Vegas. We decided to come back home to Nebraska where he could possibly get better care and be closer to family. His second surgery was done Febr 28, 2004. The tumor had complete grown back to the size it was before it was removed and even was somewhat larger. The VA referred him out to Nebraska Med Center as it is such a rare cancer. We got lucky with the very good doctors we had. They cut out the tumor and a large area all around the tumor, blasted hole with radiation and then took skin graft from leg to replace area on back. The hole is the size a small dinner plate. Scans were done after that every three months. In Oct 2005 a small nodule was found in his lower right lung. The VA removed it last Febr 20, 2006 and it is the same cancer as was on the back. While doing this, they discovered a small growth in his throat and that was removed March 19, 2006. That was negative for cancer. He developed the hiccups right after his lung surgery in Febr and that lasted over 2 weeks after surgery. I have searched and searched for more information and help as the VA is not the quality of doctor one needs for this type of cancer. They will not refer him out anymore unless he needs radiation. The chemo for this cancer is so deadly and dangerous and there are no guarantees it will help. I guess not enough studies have been done. He was stage three when surgery on back was done in 2005 and now in 2006 with more found in his right lung, they say he is stage four. All the cancer seems to be only on his right side, I don't know if that means anything or not. He now has a lump on his right arm where they had the intervenus needle during lung surgery and also appears to be getting a lump where he had a mole removed on his face recently. Both are on right side as well. He is in very little or no pain right now. We have not given up hope and I continually search for answers on what should be done next. I appeal to any and all for your ideas, thoughts, comments.
bonniegirl

pleomorphic liposarcoma

paula57
Posts: 93
Joined: Jul 2005

I'm sorry but the other day when I posted, I did not take the time to read your message. Will the VA not do the chemo or recomend it to be done? I am a cancer patient and being on chemo is not fun but it is not (usually) as bad as it used to be. I was shocked at the advances that they have made. I even had Pizza delivered at the clinic during my chemo. It does affect everyone differently though. Chemo may be the only thing that will give him some time. If he doesn't take the chemo or have more radiation are there any other options? I wish you both the luck and you will be in my prayers. Paula

anniewhit
Posts: 1
Joined: Jan 2008

Hi, my name is Ann and I am from Australia. I have been diagnosed with a pleomorphic liposarcoma which has been removed and then I had further surgery as the margins were not good. I am now undergoing radiotherapy. I realise your post was in 2006 but is there any chance you are still reading these posts? I would love a chance to chat with someone who has dealt with this disease. I cannot seem to find very much information at all.

Hope to hear from you.
Ann

Santi Jain
Posts: 6
Joined: Feb 2012

Hello there,

My father just had a surgery for a malignant tumor which doctors say is Pleomorphic Liposarcoma. Below is the Biopsy report, I do not know what it is and what I need to do now. I consulted two doctors, and they have two different views. Can you please advise and help.

HISPATHOLOGY ( BIOPSY REPORT )

CLINICAL DETAILS PROVIDED
Right Adrenal Spindle cell tumor

SPECIMEN
Right adrenal mass

GROSS FINDINGS
Received modular mass, weigh 1.6kg measuring 22*14*12cm . External surface is smooth and congested. Cut surface yellowish tissue with areas of hemorrhage. Adrenal gland identified at one pole.

MICROSCOPIC FINDING
Sections studied from various levels show a highly cellular lesion composed of spindle shaped cells with elongated vesicular nuclei, moderate nuclear pleomorphism. Frequent mitotic figures are seen 12-14/10. There are scattered giant cells in a myxoid background. Tumor is well circumscribed. Areas of necrosis are seen.

IMPRESSION
High Grade Sarcoma
Features are suggestive of Pleomorphic Liposarcoma.

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