I really am so irritated about this Vulvar Cancer that I and countless others never heard of until we get it. We hear about breast cancer and ovarian, uterine,cervical...why not Vulvar!!! I heard it was rare but how come there are so many of us!!!??? Why didn't we know it exsisted? My only thought is that women have been to embarrassed to talk about it with others. I guess if you had breast cancer it would be no big deal to discuss it since we hear about it all the time! But to tell someone I have cancer of the "hooch" must be a taboo topic. I for one am coming out of the closet and telling eveyone...uncomfortable as it may be. Perhaps if more do then these Doctors will do some further research and find ways of treating us instead of torchering us. I was shocked in my city Syracuse, N.Y. there are only 2 gyn/oncologists...what does that say??? Not good enough for me. We all need to put ourselves out there and tell people that this exsists and we need better treatments and cures too...just like the other cancers. I am really mad...no one ever told me you could get this...I just had a hyserectomy in Nov 05...I thought I was in the clear...no uterus, cervix or ovaries...don't have to worry about cancer!!! WRONG!!! Curious about anyones thoughts...sorry but I had to vent..when I read some of what others are going through..it pisses me off!!!