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angiosarcoma
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Feb 12, 2006 - 9:46 am
My brother 27 years old has angiosarcoma. Anyone out there have experience with this cancer? |
Joined: May 2006
Hello,
You may want to do a search of the CSN website to see if others have had similar experiences. You can do this by putting search words, such as "angiosarcoma," in the search bar. If you find someone you would like to contact, you can do so through the internal CSN email system. For more information on CSN email and other CSN functions, click on the "Help" link at the top of this page. I wish your husband the best on his treatment.
Take care and be well,
Dana
CSN Dana
Joined: Feb 2006
I have radiation induced angiosarcoma of the breast. It seems that we are a very rare group. I was diagnoised in Febuary 2006 after 6 months of different doctors and antibotics. It was finally diagnoised through a biopsey, High Grade stage 111. I finally found a surgeon where I live that is saying I will have to have a simple masdectomy with a skin graft and possible radiation. I do not know if the radiation will be possible as I had radiation before on the same area. I am hearing that chemo does not work well with this type of sarcoma, but I feel that each situation would be different. There are a few people that have angiosarcoma on http://www.sarcomaalliance. God Bless and Good Luck, I would like to hear back from you
Joined: Feb 2006
Hi bobby,
My brother is 27 years old and has been diagnosed with angiosarcoma last August 2005. It orginated in his spleen and he has metastasis in his liver. They removed his spleen and he has received 6 sessions of chemotheropy. They said after that it had reduced and he was to come back in 3 months. Since the last session in december he got pain in his stomach and has had another operation to remove adhesions as a result of first operations. He is now at home recoving from that but since last week he has had a pain in his shoulder. The doctor was there today and wants to send me in for a scan as he says it might be coming from his liver.
Joined: Feb 2013
I also have angiosarcoma of the breast. I just finished 6 rounds of chemo (having been given taxoil) The chemo did not work. Rather the cancer did not shrink at all! Well at least it did not spread to other organs It is so hard to find others with this cancer. I have up coming surgery to remove the breast then will start radiation. Email me
Joined: Jan 2004
Hi!!! I have angiosarcoma of the liver, It is very rare. I was dx in March 2003. I have had to RFA's and chemo.... and I am about to start another type of chemo. Please feel free to email me if you want to talk about this. What type of angiosarcoma does he have? In Gods Love Barbara