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Extraskeletal Ewing's Sarcoma/PNET
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Jan 29, 2006 - 9:37 pm
I've been putting this off for too long, but I'm really getting curious about my cancer and how many people there are out there who have been through it. I was diagnosed with a PNET/Ewing's tumor around my right lung in August 2005, and I can't seem to find many people who have heard of it, let alone who have survived it. I do know that it is very treatable, since my tumor had nearly disappeared after only five cycles of chemo. but I still have a way to go. If anyone knows anything, please help me out. Thanks! |
Joined: May 2006
Hello,
You may want to do a search of the CSN website to see if there are others who have had a similar experience. To do this, enter key words such as Ewings Sarcoma in the search bar at the top of this page. If you find someone you would like to contact, you can do so through the CSN internal email system
I wish you the best in your treatment.
Take care and be well,
Dana
CSN Dana
Joined: Jan 2001
Any luck finding someone else with your type of cancer. Sarcoma's are a rare type of cancer to begin with and then when you start categorizing the type of sarcoma they become even more rare. I live in Maryland in the Baltimore metro area and we have a high cancer rate to begin with in this area and we have two very good cancer centers (U. of Md. and Johns Hopkins) so I have met others with sarcomas though we no longer keep in touch. Would like to hear how you are doing. Take care - John.
Joined: Feb 2009
Hi... i was also taking treatment for Ewings Sarcoma. I have undergone 4 cycles of chemo and i am doing fine now. Though it looks like that some more treatment would be required.
I just wanted to know how u r doing now. Thanks.
Joined: Mar 2010
Hi. Hope you are all doing good!! I just finished treatments for Ewing sarcoma in June. It is very uncommon. My tumor was on the 9th rib on the right side. If you want to talk you can email me at m_ammon6@yahoo.com. take care.
Joined: Jun 2011
Funny that you were searching for extraskeletal ewing's sarcoma /PNET. diagnosed patient . there are very few of us in the WORLD diagonised by this cancer, I was diagnosed in 1998 cornell in NYC with a tumer on my left lung, I have survied 2 more cancers, T-Cell lymphoblastic lymphoma, and muco epidermoid carsonoma ,, I have been blessed my friend with life, that i cant thank enough the GODs every moment of my living life , MABU..Would love to hear from you, E-mail....micoffj@yahoo.com
Joined: Jun 2011
Funny that you were searching for extraskeletal ewing's sarcoma /PNET. diagnosed patient . there are very few of us in the WORLD diagonised by this cancer, I was diagnosed in 1998 cornell in NYC with a tumer on my left lung, I have survied 2 more cancers, T-Cell lymphoblastic lymphoma, and muco epidermoid carsonoma ,, I have been blessed my friend with life, that i cant thank enough the GODs every moment of my living life , MABU..Would love to hear from you, E-mail....micoffj@yahoo.com
Joined: Jun 2011
Funny that you were searching for extraskeletal ewing's sarcoma /PNET. diagnosed patient . there are very few of us in the WORLD diagonised by this cancer, I was diagnosed in 1998 cornell in NYC with a tumer on my left lung, I have survied 2 more cancers, T-Cell lymphoblastic lymphoma, and muco epidermoid carsonoma ,, I have been blessed my friend with life, that i cant thank enough the GODs every moment of my living life , MABU..Would love to hear from you, E-mail....micoffj@yahoo.com
Joined: Jun 2011
Funny that you were searching for extraskeletal ewing's sarcoma /PNET. diagnosed patient . there are very few of us in the WORLD diagonised by this cancer, I was diagnosed in 1998 cornell in NYC with a tumer on my left lung, I have survied 2 more cancers, T-Cell lymphoblastic lymphoma, and muco epidermoid carsonoma ,, I have been blessed my friend with life, that i cant thank enough the GODs every moment of my living life , MABU..Would love to hear from you, E-mail....micoffj@yahoo.com