CSN Login
Members Online: 1

I need some help,please (tectal glioma survivor)

Posts: 1
Joined: May 2005

OK, I have survived 43 brain surgeries, two comas, radiation therapy, having my whole skull taken off and made thinner because my brain was swelling and I was dying, and lots of other 'stuff'
Not fun, but I survived.
I have just been diagnosed with someting called an 'acoustic neuroma'. Esentially another brain tumor.
OK, the doc (an infection diseases GP) said 'Oh, it
s NOTHING, and anyway, if they did have to do something, they can't do radiation.
I need information on this.
It's been 5 months, and more problens with hearing and mentation since then, but doc doesn't do anything, and my mom has not made an appt with an oncologist.
It's up to me, I am 36, and will do what I know needs to be done, which starts with information.
thank you

Posts: 1
Joined: Feb 2006

I hope you are well enought to read this and take action. You need an advocate. You know inside of you that an acoustic neuroma is serious and needs attention. Find a friend, a cousin an uncle, somebody that gives a **** and get them to advocate firmly on your behalf. Don't let anybody tell you you can't survive check out my story at bt1993.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network