Nov 29, 2005 - 11:23 am
I have been taking ammonium tetrathiomolybdate (TM) for approximately 6 months in an effort to fight my metastatic colon cancer in my lungs and liver. This is experimental treatment that attempts to lower your copper levels to approx. 15% of normal to slow the cancer growth, since the cancer needs copper to grow. I have succeeded in lowering my ceruloplasmin from 37 to 10 mg/dL (normal is 18-36) during this time. (I'm shooting for 7.) I also began taking Avastin and low levels of 5FU and leucovorin during this same time period and something is keeping the cancer at bay it appears, but I don't know which treatment deserves the most credit. (I had began a very pesky cough in July, 05 that has pretty much subsided.) The beauty of this treatment is that it has not been very toxic so far... (I have been in the hospital 3 different rounds from previous chemo). My white blood cell count is still normal, but my red blood cell count and hemoglobin are slightly low. There is a VERY thorough write-up about TM located at www.coldcure.com.
I would love to hear from others that are taking TM and what side effects they have experienced and whether it is helping.
This stuff is not FDA approved, but I don't have time to wait on them. All info on Avastin shows that there are at least 7 known "pathways" for cancers to get new blood supplies and Avastin blocks one of them. The cancer eventually uses one of the other pathways to get the blood supply it needs. My logic in taking TM is that pinching down on the copper helps block ALL pathways and logically should work well with the Avastin to slow the growth while the 5FU kills the little devils.