Oct 31, 2005 - 5:46 am
I was diagnosed March '05, I am 21 and had a visible to naked eye tumor growing out of my cervix for 5 months before I was properly diagnosed. I have a rare and aggressive form of cervical cancer thought to be caused by genetics. I also have severe (CNI/3) precancer on my cervix. My actual cancer is thought to be invasive to my lympatic and vascular systems. Due to my age and the fact that I have no children and still no desire to have them (although I want them in the future) my doctor (who I must say is excellent) is offering me a new procedure. Done in only about 300 women world wide it may not be offered everywhere. My treatment is in Sacramento CA. The procedure is called a trachelectomy. It is the removal of the cervix and some surrounding tissues while leaving the uterus and ovaries intact, placing a permanent stitch where the cervix was. Childbearing is possible, miscarriage is roughly 30% this does have a higher chance of second trimester miscarriages. BUT I've been told with a high risk OB a pregnancy should be fine ending in a C-section birth.
I want all you ladies to know that just because you have cervical cancer doesn't mean your chance for carrying your own child is out of the question. It is possible! Ask around and try to find a way before you let go of your uterus.
But....despite all of this....being in the good hands of my doctor and knowing I am recieving the best of care and most advanced care, I am still scared. And angry....I feel misunderstood more than I ever have in my life. More alone than I ever have before. It makes me sad sometimes. Lately I've been feeling like the precancer could be progressing. I'm having symptoms again. I keep telling myself not to worry that when I have surgery on Nov 10th that it will all be taken care of, but it doesn't help me completely. I'm nervous about my surgery because I remember the pain of my previous surgery, I didn't recieve good pain management, and the lymph node removal worries me. I don't know what to expect from not having a cervix anymore. Is sex different? Am I going to enjoy it still? what about the swelling in my pelvic area and legs after lymph node removal b/c the lymph isn't being drained like it was before? All these questions....If any of you ladies could help me out I'd appreciate it.
Stay strong, fight hard, live long.