CSN Login
Members Online: 9

clinical trial pill called Sorafenib??

lizaqr623
Posts: 10
Joined: May 2005

Hello everybody,

My father who is age 65 underwent surgery 4 months ago to have his Kidney removed after being diagnosed with stage 4 Kindey Cancer.The cancer has spread to his lungs(2 small spots) and now he was just told to the bottom of his throat.He has been experiencing quite a bit of pain which he was taking Hydrocodone for but the pain has gotten worse within the past 2 weeks.The doctor has now put him on Morphine Sulfate 30 mg's twice a day,and he will start a clinical trial pill called Sorafenib to try and stop the growth of the cancer. Has anyone heard of this new experimental drug? Andhas anyone here been prescribed a morphine pill for pain? That seems to me that should be prescribed for people who are close to the end, but maybe i am wrong.Please,anyone who has any information or advice would be so valuable to me. Take care.
-Liz

fandaj
Posts: 83
Joined: Apr 2003

Hi Elizabeth, This is Aunt Arlene. Go back to page 3 of this discussion board to see your original message and mine. On the same page someone is asking about the clinical trial your father will be starting with the same medication. Maybe you can write to them and get some first hand information. Love, Aunt Arlene

lizaqr623
Posts: 10
Joined: May 2005

Hi Aunt Arlene, Thanks i sent her an email asking about how she is doing with it,so we will see and i'll let you know what she says.
Love,Elizabeth

bevsbro
Posts: 2
Joined: Aug 2004

My sister is using sorafenib and has been on it for about 2 1/2 months. She has 4 tumors 2 in the lungs and 2 in the pocket where the kidney was. She had her first scan 3 weeks ago and all the tomors have shrank 20% to 40%. The side effects are sore feet and hands, even a few blisters but all are not that bad and can be managed. Good luck!

lizaqr623
Posts: 10
Joined: May 2005

hello bevsbro,thank you for responding. Very glad to hear your sister is responding well to the medicine. It makes me feel much better about Sorafenib knowing that her experience has been positive. Wish her well and take care.
-Liz

Jimmyb
Posts: 1
Joined: Dec 2005

I have metestatic renal cell, tumors in my lungs, been through IL2, Avastin, IMRT radiation, and now Sorafenib. IL2 shrunk 2 tumors, but the others grew, Avastin did nothing, radiation shrunk a large tumor next to my spine (thanks to the IMRT Tomotherapy!), now sorafenib has shrunk all remaining tumors 25% - 40%! Been on this for a little over 2 months with almost NO side effects - fatigue, mild mouth sores, mild mild hand sores, lost eyebrows, and that's it. I was diagnosed in Feb 2005. I'm very hopeful about the sorafenib, but if this stops working, the news on SUTENT seems to be even more successful than sorafenib. I think you are on the right track! Good luck!

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network