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Wilm's Tumor Survivor
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Oct 21, 2005 - 8:04 am
hi im 22F and i had wilms turmor stage 3-4 when i was 3yrs old. i survived with out having cancer again. i want to know if there is anyone else who like me has a very large indentation where their kidney used to be. ive never seen anyone like me before and my docotors say they dont know if other survivors grow up to have a indentation where their kidney used to be... but i imagine there has got to be someone out there!also i have pretty sharp back pain most days after doing sports or bending over alot. which could be attributed to osteoperosis in the spine (due to radiation) or having had some muscles removed/radiated on only my right side. i also have what looks like a bump on the non-operated side of my back when i bend over but not when i stand up... is there anyone like me? |
Joined: Sep 2003
yeah! i totally have a weird indentation where my kidney used to be...it makes shopping for skirts difficult..hehe. and i have back problems too due to the radiation therapy..so yeah. you're totally NOT alone on that one...the bump thing i don't have, but my the inoperated side of me is a little larger, due to my kidney growing larger to accomodate the job of 2 kidneys...but yeah. i just wanted to let you know, i have the indentation too.
Joined: May 2006
Hey! I might be a little late with this, but I just got on the site. Anyways, I am a 22F Wilm's Tumor survivor as well, and while I don't have an indentation (I did not have radiation initially, only when I had lung mets), but I do have a weird bulge where my abdominal muscles weren't put together correctly, and uneveness in my rib cage where they were opened, and from radiation. And much like you I have a lot of bak pain if I am standing for too long. I don't know if that's any help to you, but its good to hear I'm not the only one
Joined: Jun 2006
I'm 35 and had Wilms Tumor when I was 5. I had my left Kindey removed. In front I have what I guess you can call an indentation. The muscle is smaller there and therefore sinks compared to the right side. On my back I do have a bump on my right side where there was no surgery. This is because the muscle has grown bigger to try to support my back due to the lack of muscle on the left. My right Kidney is also bigger than normal. I hvae back pain every day. OUCH!. So yeah, your not alone. Take care.
Joined: Aug 2006
Hi! I am 53 years old and just found this site recently. I had my right kidney removed when I was 2 years old. I do have a huge indentation on that side, in addition I was diagnosed with scoliosis at age 12 and which I was told was made more pronounced due to the surgery and radiation.I notice that most of these replies are from people who are 35 or younger. Is there anyone closer to my age?
Joined: Mar 2004
Hi Suzy! I am 45, diagnosed at age 3, right kidney removed, chemo, radiation, the works.
Deja vu regarding all the symptoms mentioned and I can add one more. I don't have any abdominal hair where the radiation treatment was done! LOL
I have all the others, scoliosis, kyphosis, ever kind of osis...LOL Also the hump on my back non-tumor side and the void where they removed the kidney. I think most of that is tissue damage from the radiation though.
Joined: Aug 2006
joining the chorus here.... me too on indentation/bump. i think my bump is muscle compensation, but i don't know. indentation might be from radiation. i also have slight scoliosis and one leg is 1 cm shorter than the other (mostly unrelated to wilms). so ALL my skirts and pants are a little lopsided! :>
i definitely don't have a great back, but i find abdominal exercises (crunches, etc.) do help. a P.T. might be able to suggest good exercises? maybe talk to someone who has dealt with scoliosis, since that's also a misbalancing of the back.
sorry, suzybee, i'm 31, although i was diagnosed at the relatively "old" age of 6 1/2.
Joined: May 2001
Hi! I am a 31 yr old survivor, left kidney removed at age 4. I have the indentation with no bump. I do have mild scoliosis and occasional back pain. I have never met or spoken with another Wilm's survivor so nice to "meet" all of you! :-)
Joined: Oct 2006
I was dianosed with a wilms' tumor at the age of 4. It was accidently discovered due to a series of events. I was hospitalized for a routine appendectimy. My appendix was removed but after recovery I still had severe admonial pain. I had an exploritory operation apon which they discovered a twisted intestine that burst while during the operation. It was during this operation that they happened apon finding a tumor on my right kindey. My kindey was removed and sent for testing. I was later diagnosed with a wilms' tumor.
Joined: Dec 2007
oh, there ya'll are!!!!!
i just found this site and am looking for people such as me who has survived wilms tumor from the dinosaur age when none of us was supposed to live and still here we are.
i have chronic back pain, scolios, female problems that caused me to need a 5 hour hysterectomy.
yes, i am happy and blessed to be alive but shoot must we suffer for living
anyway please answer back i want to chat with you guys
Joined: Jan 2010
hi everyone!! i was diagnosed with wilms when i was 9 months old, i'm now 17. i've been healthy ever since and reading all these stories makes me so happy that theres people just like me! i just get worried because usually i read something discouraging that says people that have wilms have a higher risk of developing cancer later on in life :( i'm so glad that everyone that posted here is alive and well! and hopefully stronger then before :)
Joined: Mar 2011
I was diagnosed at age 6, now 49.
I do have a fairly noticeable depression where my left kidney was and not sure if it is related but have scoliosis or curvature of the spine.
Joined: Oct 2010