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NHL diagnosis but feeling well

rodgerr1
Posts: 4
Joined: Oct 2005

I was just diagnosed at 56 with follicular NHL. I still feel great and am hopefull. Anyone out there gone through any Clinical Trials or Rituxan treatments. I am optomistic that with my faith and a good attitude I will soon be in remission. Rodger (rodgerr1)

tigersi's picture
tigersi
Posts: 15
Joined: Jul 2005

hi roger
sorry about dx. same here,i'm 51,dx 7/26 w/follicular b cell grade1,then in august told stage4 w/35%b-marrow.i will redo cat& pet scan in november to see progress or pace of growth or not.could start retuxin already but only complaint i have is fatigue and told not related.
looked into other causes for this but no answers.
also looked into farville vaccine clinical trials
here nyc.its 50-50 placebo or vaccine & growth
hormone both w/retuxin. i'll probably go w/just
the retuxin,not in the trial,if any progression
and/or if any symptoms develop. so...i don't have any treatment experience to share,but thats where i'm at so far...let us know how it goes & welcome to nhl-discussion board..i try to check for new posts regularly.take care.

stillpam
Posts: 2
Joined: Oct 2005

My husband is currently in remission -- having gone through both CHOP and Rituxin treatment. He is only a little more than a year into his treatment -- he was diagnosed in July of 2004. His treatments of CHOP were tough -- he also has other health considerations. But even with those limitations, he was able to endure. He is particularly strong, however.

I believe that an aggressive course of chemo is the only way to get into remission. And, thankfully, you are in an area where there is available treatment. And, hopefully, your insurance is good. Rituxin is wildly expensive.

I want to wish you strength and positive energies for your trials ahead. By feeling well going in -- I am sure you will be at an advantage.

CharN's picture
CharN
Posts: 6
Joined: Oct 2005

Rodger,
I had CHOP and Rituxin treatment and am in remission now. Rituxin is great. Very little or no side effects. Not even hair loss. CHOP on the other hand... But it worked! I hope all goes well for you. Try to stay focussed on getting well and be optimistic. This site has a wealth of resources and links. Best wishes and God Bless. Char

emilylmills
Posts: 1
Joined: Feb 2006

i am 30 i was diagnosed at just turning 28 i had abvd and rituxin and i am in remision good luck

alsgirl
Posts: 2
Joined: Mar 2004

I was diagnosed in 95 with NHL. Stage 4 but thanks to rituxan it has stayed under control. It has been 11 years this past April and I stil feel pretty good. I have a reaccurance about every 8 to 12 months. Take another set of treatments and go for another 8 to 12 months. Also help from the grace of god. good luck and hang in their. Keep a positive attitude.

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