Aug 18, 2005 - 5:21 am
My husband has been diagnosed with SCC at the base of tongue and it has spread to one lymph node on the right.
You all sound so brave - I am so scared for him... Yesterday we met with the tumor board and got quite morbid statistics as to the survival rate.
The doctors advised against an operation on the back of tongue, because maybe he wouldn't be able to eat except through a tube in his abdomen. The treatment would be 7 weeeks of radiation together with chemo the first and third week (maybe more I'm not sure) starting the week of Aug. 29th. They want to radiate both sides of the neck even though the tumor on the tongue and the cancerous lymph node are both on the right.
We plan to meet with the radiologist and oncologist next week. In the meantime we made an appointment with UCLA for a second opinion and also with Stanford.
I am wondering if anyone has had Proton radiation therapy - we read that it's supposed to be stronger than conventional radiation and also do less damage to surrounding tissues. I realize that both chemo and radiation will be very difficult for him, but what are the most important questions - we have read so much... learned about the probable loss of the salivary glands, stiff neck - the doctors didn't say anything about a temporary feeding tube... there's so much we don't know. Any information about this whole process would be so helpful.