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Btrcup's picture
Btrcup
Posts: 287
Joined: Jun 2004

Hi all, well Scott is in the hospital again. I had to call his onc Monday afternoon because Scott could not stop vomiting. They admitted him right away. He was dehydrated and is down to 133 lbs. (he's 6ft). This is all getting so scary. He started crying in the hospital and all I could do was hold him. It's so frustrating not knowing the right words to say.

They started a PICC line today to feed him the nutrients he needs. He did try eating some light solids last night, and has not vomited, but he said it took all his willpower to do that. His parent's came down for a visit, but are in complete denial. They will not face it, and it makes it hard on Scott because he tries having conversations with them about how he feels and it goes in one ear and out the other.

Well I'll keep you all posted on Scott's progress.

As always, you are all in our thoughts.

Linda (Baltimore)

deneenb
Posts: 130
Joined: Jun 2004

Linda,

I'm so sorry that you and Scott are having to go through this. I wish there was something that we could say or do to make it all better. I know how you feel not knowing what to say to him. Maybe just being there and holding him is what he needs. I will pray for you and Scott and your children.

Best Wishes,
Deneen

pjenks57's picture
pjenks57
Posts: 112
Joined: Nov 2003

Dear Linda, I know exactly how you feel. My hubby has had cancer since Sept 03 and I have yet to figure out what to say and when to do what! BUT I am there for him and that is about all that is required. Don't give up and don't beat yourself up. You are there for him and if you have faith in God just lay the hard stuff at his feet and let him take over and deal with that.
Also, please don't forget to do things for yourself too. I forgot that for a long time and almost lost it.
Remember when you need we are always here for you to talk, cry, vent and pray or whatever it takes to give you support and love.
God bless you and your family
PJ

CAMaura
Posts: 719
Joined: Feb 2005

Dear Linda,

Sending you prayers and thoughts of strength and courage during this incredibly hard time for all of you.

Maura

scouty's picture
scouty
Posts: 1973
Joined: Apr 2004

Oh honey,

My heart is with you always!!!! Have you thought about getting some hopsice help at home? Scott needs you now probably more then ever since his parents are in denial. I know that the times I get really scared, words don't always work, the holding does so, you keep that up. Get some help for you about all of this. I think Sue (bsrules) can tell you about their servies better then I can.

Very special hugs to you!!!! You are something very special and I am honored to know you.

Lisa P.

themis01
Posts: 168
Joined: Feb 2005

Linda
I am sorry to hear your news. You and your family are in my thoughts.
Erika

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

It's wonderful that Scott has you there; it's always more difficult for the caregiver..keep yourself rested and as upbeat as possible. Hopefully the news
will be good.. Hugs & Prayers, Nanuk

jsabol's picture
jsabol
Posts: 1156
Joined: Dec 2003

Linda, both you and Scott are in my prayers. He is lucky to have such a care partner. Judy

alihamilton's picture
alihamilton
Posts: 344
Joined: Jan 2004

Oh Linda, you must both be worn out physically and emotionally. Just having you there is enough for Scott though...you do not need to find words..just hold him. I guess his parents just cannot come to terms with the fact that their son is so ill. It is the worst thing in the world for a parent to have a "child" so ill.

Do take care and know that we are all thinking of you.

Ali

JKendall
Posts: 186
Joined: Nov 2004

Hi Linda...I know what you're talking about. I've been in a similar situation with my wife (Jerri) about 5-6 months ago. It's some of the hardest times we've been through, I'm sure it's the same way for you guys.

Just hug each other, then hug some more. Gently. Like others have said, don't forget to take care of yourself too. Get hugs from others outside the hospital, and try (easier said than done, I know) to relax some and rest.

If the words are needed, they'll come. I hope all goes well for you and Scott.

Take care. Jimmy

crazylady
Posts: 544
Joined: Jun 2004

Linda,
I am so sorry to hear that Scott is not doing well. He is so lucky to have you!!
You, Scott and your family are in my thoughts.
Take care,
Jamie

jackpatt
Posts: 3
Joined: Jun 2005

HI! my name is jacqueline..my mother was admitted to the hospital on 060905 also: she has a chest tube because her body keeps filling up wtih fluid and collapsing one of lungs: we are discouraged but still trusting in GOD: praying for you and Scott and that GOD will hold you both:it is hard being a caregiver: also praying for scott's parents that they will come to peace on this matter also...i know GOD is able...get rest as much as possible and we are praying for you both!

2bhealed's picture
2bhealed
Posts: 2084
Joined: Dec 2001

(((((((((linda))))))))

hey honey, I am so sorry that Scott is having a tough go right now--and that means for you too.

I can totally understand how difficult it is to have his parents be in denial. My father was completely in denial about my sister. I will share what I did if you are interested--email me. (maybe it's different with a FIL than your own daddy).

You are as always in my daily prayers. And just because we all think you are amazing and strong, don't be afraid to take time for YOUR recharging so you can be as upbeat for Scott as possible. I'm not saying anything you haven't heard a hundred times I am sure.

My heart goes out to you and your kids. Big time.

peace, emily

kangatoo's picture
kangatoo
Posts: 2115
Joined: Feb 2004

Linda......ALL of us here are holding onto each other in life. The love we share is the most sincere and comforting thing that we have in common. Jen and I are proud to be a part of that and so very blessed to be able to share that with you and Scott. We are touched by your strength....we reach out together and share our prayers with you both.
"Hold tight Linda!"
luv and huggs, Ross and Jen

Glv49
Posts: 206
Joined: May 2005

I'm sorry that you guys are having such a rough time. Just hang in there, he is lucky to have you, and you him. Enjoy each moment together, and remember to take care of yourself also, for your children. God bless you and your family
Glv49

ramona41's picture
ramona41
Posts: 72
Joined: Jul 2004

prayers and hugs and love to you and your husband

love ramona

taunya's picture
taunya
Posts: 392
Joined: Jul 2002

Linda,
I am so sad to hear about Scott. It is so difficult for you to be able to know what to say and do. I will pray for all of you and I hope his parents are able to come around and really be there for him. God bless you.
Love,
Taunya

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