May 25, 2005 - 12:04 pm
Hodgkin's Stage IIB. Went through Stanford V treatment last fall/winter. By Christmas, falling at odd intervals and trouble standing/walking. Admitted to hospital for "paralysis" below the diaphragm---by then couldn't walk, support self, no feeling of bladder/bowel, able to move legs side to side but couldn't lift off of bed. Arms somewhat better but still weak. Spent 1 month in hosp. with lots of tests coming back negative. Took a month to get from bed to wheelchair, another month from wheelchair to walker,etc. walker to cane. Now, still using cane because knees feel like they will give out especially with up/down stairs and walking. Can't get to sitting/standing without assistance. Dr.s are stumped and all I get are shrugging shoulders. Trial of Carnitine and Lipoic Acid. Not sure if working. ANYONE else out there have these side effects??? Is this permenant?? Finished 20 days of radiation last month but no follow-up scans since January. Next visit w/ oncologist and radiologist in next couple of weeks.