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Long Term HD survivors

lindazame
Posts: 46
Joined: Jan 2002

Hi All,
I would really like to talk with other long term survivors of Hodgkin's Disease. I was treated in 1971 and I am looking for other survivors treated then or even later. Please contact me directly at zame@earthlink.net thanks!

Maur1966
Posts: 23
Joined: Oct 2004

Hello~

I am not a long termn survivor, but I plan on being a survivor! :) completed treatment on 3/21 and I have a follow up pet scan next month. Praying that all is clear with that one. Any how, I just wanted to ask you what type of treatment did you have back in 1971? Also, is there anything that you have done/are doing to keep from relapse? Thanks for your input and CONGRATULATIONS!!~ Maureen

kiren
Posts: 40
Joined: Jul 2004

Hi I am HD survivor diagnosed in 1998. Treated surgery+ABVD+rad. Doing good with HD, no relapse, but recently 6months before got diagnosed with Tongue cancer just initial stage. Well surgery again, doing good now. Don't know this new ca was related to HD or rads, or just luck! any way I am happy to be alive today. Good luck to U all survivors.

Glorihl
Posts: 11
Joined: May 2005

Hello, I am being treated for HD, I was supposed to have my last chemo on May 3, but a CT scan showed a shadow in the mediastinum and lung infiltrates and I will be having a PET scan done on June 1st. My doctor is waiting in case I have an infection, so it won't interfere with the PET. I'm scared, but also hopeful that it will be nothing more than scar tissue. I'm curious, what kind of treatment did they have back then?

lombards
Posts: 6
Joined: May 2005

Hi there:
My husband was diagnosed with stage four Hodgkins in 1973. His treatments included a spleenectomy, MOPP therapy and cobalt. We are checking out this website together and he wanted to reply to your letter. Have you had any other health issues since Hodgkins?
s & p

Bonebrake
Posts: 7
Joined: May 2005

I was diagnosed with stage II Hodgkins Disease 31 years ago at the age of 10. Except for removal of a non-cancerous thyroid cyst 16 years ago, I have not experienced any secondary cancers. Because I was treated with some chemo and high-dose radiation throughout the neck and chest, I take three daily doses of Sialor. The drug is manufactured in Canada and is used to treat dry mouth. It is an over-the-counter medication reported to reduce the propensity for lung cancer. I drink a lot of green tea and try to eat fresh fruits and vegetables (including broccoli).
Due to muscular/skeletal problems, I do experience limited pain each day. I also celebrate each new day. I have been married for 17 years, have three healthy, natural children, and would enjoy talking with other long-term cancer survivors who were treated with high-dose radiation in the eary 1970s.

hodgcando
Posts: 2
Joined: Jan 2006

Hi, I had Hodgkins stage IVB in 1975 (i was 25y.o.). I had the MOPP and radiation. I get sick very easily since havng had the disease: cold, infections. How about you?

Bonebrake
Posts: 7
Joined: May 2005

A article which may be of interest can be found at http://caonline.amcancersoc.org/cgi/content/full/54/4/208
and discusses the latest in long-term complications following childhood and adolescent cancer.

klbermudez
Posts: 2
Joined: Jul 2005

Hello, I'm 16 years out of Stage IV Hodgkins. My treatment was also the spleenectomy (that was for staging purposes along with the lymphagiogram)I started with the MOPP chemo but had so many problems with the prednisone part of the treament that my Dr switched me to COP so he could take me off the prednisone and switch the nitrogen mustard to cytoxen. I guess it worked fine because I'm still here. I had some side effects from treament - most notably was the chemical menopause, good thing I had already had my kids. I have also had the numbness that never went away in my hands and feet. I also have some joint problems but who knows, it could simply be getting older. I'm just glad for the additional time I have had because it has allowed me to see my kids grow up!

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