Apr 18, 2005 - 9:23 pm
I am a 27 yr old woman that has survived MALT lymphoma of the salivary glands twice already. When I was first diagnosed almost 6 yrs ago, there was so little information available that it was really difficult to know how to proceed. Since then, I have seen 10 different onc's for this and have yet to find one that has actually treated another pt with it and there is still very limited information on the websites I have researched. I have been treated both times w/ localized radiation and yet b/c this type of cancer is so rare, it is still unknown whether or not that is the most effective treatment. I have been told that this cancer will recur again b/c I am "genetically susceptible" to it and something "environmentally" is triggering it. If anyone knows of any onc that has treated this or another pt that has survived this specific type of cancer (in the salivary glands), please let me know. I would love to get in touch w/ them! Right now, I am feeling all by myself in this world of the unknown! There just seem to be so many questions that I don't have any answers for. I trust God w/ everything I am in this, but the human nature side of me still wants to know what the trigger is, if there is something I can do to prevent it or to more efficiently treat it again when it comes back. Any thoughts out there?