Hi, I'm new!

skier03
skier03 Member Posts: 4
edited March 2014 in Colorectal Cancer #1
Hi everybody!

I just joined the site yesterday and wanted to sell hello to all. I'm 23 and was diagnosed with rectal cancer in November 04, at 22 years old. I've had pre-op chemo (FOLFOX + erbitux) and surgery on March 16. Surgery went well and I am recovering nicely. Sadly though, they found that the tumor broke the bowel wall and cells were in 5 lymph nodes - making it a stage 3, something I was unprepared for at the time. Four monts of post-op chemo is supposed to start this week - same as before + avastin. I've not had radiation in an effort to avoid going through menapause at my age.

It seems like you've got a great group here and lots of support. That's so wonderful and good to know.

Like I said, I just wanted to say hello and introduce myself and my story to you all. I'd love to hear from anyone!

skier03 :-D

Comments

  • Shandle
    Shandle Member Posts: 204
    Hi skier! I'm Wanda. I haven't been here too long but yes, there's a lot of wonderful support. Happy to hear that the surgery went well, but 22 years old??? Bless your heart sweetie. We are all here to listen to your ups and downs and support you with our love. Lets us know how your treatments go. Huggs n prayers ~ Wanda (from Arizona USA)
  • CAMaura
    CAMaura Member Posts: 719 Member
    Hey, Hey!

    Welcome!! So nice that you have joined. I am new as well (only abut two months) and everyone is sooo nice - helpful and fun. You will be very happy here; lots of support and honest/compassionate info.
    Please post often.

    Cheers,
    Maura
  • MJay
    MJay Member Posts: 132
    Welcome to the group skier! Sad your here but glad you came.

    I was diagnosed with stage 3 rectal cancer last year at age 37. I finished with treatments this past January and life is good.

    This is a great place to be for people like us!!

    MJay
  • andreae
    andreae Member Posts: 236
    Hi skier03

    I'm so glad you found this site (well sorry you have to be here, but this board is awesome). I was diagnosed at 20 with Stage III rectal cancer too! I had the pre-op radiation/chemo, surgery with a colostomy and more chemo. Unfortunately, I progressed onto Stage IV but I continue to do well!

    I really look forward to hearing from you. Post anytime... To vent, ask questions, whatever! I wish you the best of luck with chemo this week and I hope all goes well.

    Love and hugs,
    Andrea
  • tkd3g
    tkd3g Member Posts: 767
    Hi Skier.

    We are always here with open arms. So sorry to hear of your diagnosis. It plain out sucks! But... we are here to help.

    I was diagnosed in March of 2003 with stage 3 rectal cancer at the age of 43. I did chemoradiation for 6 weeks, surgery, then post op chemo for 4 more months.

    I am officially cancer free today, one year later.
    Hopefully it will stay that way!! :)

    I will have my 3 girls scoped in their 20's just as a precaution.

    You can find information, support, encouragement, nutritional advice , a shoulder to lean on, an laughs. A very important tool in your treatment. Laugh hard, laugh often, hey, laugh till you pee in your pants! ( I have to warn you that things can get a bit racey around here. Not that I have anything to do with that!)

    Anything we can help you with, just give a holler.
    Most of us have e-mail on this site, so you can contact us privately, if you want to.

    Hang in there. You can do it.

    Barb (Who left her skiing days behind long ago)
  • steved
    steved Member Posts: 834 Member
    Welcome- simialr story to my own but I'm 10 years older. Just finished chemo and looking to have my ileostomy reversed (do you have a stoma or did you get away stoma free?). Your attitude sounds very positive and will take you a long way. I too remember the shock of being told I was stage three which took a while to adapt to but in some ways it means you qualify for post op chemo which helps in the long term prognosis (always look on the bright side!).
    Anyway - looking forward to learning more about you over time- I'm sure you have a lot to contribute from your experiences.
    Steve
  • kerry
    kerry Member Posts: 1,313 Member
    Hi Skier,

    Welcome to the "semi-colons"!! It's kind of bittersweet, I'm glad you have found this wonderful site for help, support and caring, but I'm so sorry about your diagnosis and reason for being here.

    I was diagnosed 2 1/2 yrs ago, so I am one of the "older" ones (figuratively guys not literally) here.

    It is a great resource for everything you wanted to know about this disease and don't know who to ask. We have lots of prayers, humor, and caring on-line friends.

    Come here often and let us know how you are doing.

    Kerry

    P.S. Many of us have personal web pages. You may want to read some of them.
  • SisterlyLove
    SisterlyLove Member Posts: 14
    Hi Skier,
    I am also new to this wonderful group! I posted for the first time yesterday and already have been given some wonderful info and support. I too am sorry you are going thru this. I am on the caregiver end of this awlful cycle! I wish you the best. You can beat this! Stay positive and focused!!
    Godspeed,
    SisterlyLove
  • madu
    madu Member Posts: 53
    Welcome to the semi-colons. I sure do hate to see someone so young going through this -it's no fun. I was diagnosed at 31 (and considered young!) with stage IV rectal/sigmoid cancer with a met to the liver. I had a colon and liver resection and 8 months of 5FU and leucovorin (the other drugs were in trials during my treament) and 28 sessions of radiation. 6 years and 8 months later, I'm still here, no evidence of disease and about as "normal" as you can get. I can sympathize with the concerns over radiation. Did you know they can "lift" the ovaries out of the path of radiation? Or, they can take ovarian tissue, preserve it and then later implant it under the skin and it will produce eggs. There was just a story about this in the media and the lady was able to have children. I'm not sorry I had radiation even though it did impact my ovaries (granted I had 10 years on you). My rad onc. had done his post doc at Harvard on rectal cancers and radiation and how it impacted survival rates and he was very persuasive. Since rectal cancers tend to return to the site, he felt the kill and repair generated by radiation was worth it esp. at my age. Personal choice of course but the options I mentioned above had not been explored until after it was too late for me. Glad to hear you are recovering well - keep us posted.
    Heidi
  • taraHK
    taraHK Member Posts: 1,952 Member
    Hi Skier03,
    I am sorry to hear of your diagnosis, but warmly welcome you to this group. It has been a godsend for me -- full of practical information and also emotional support.

    I was diagnosed with rectal cancer at age 44 (no risk factors, very healthy). My treatment was similar to yours (except that I did have presurgical chemoradiation -- already had 2 kids and not wanting more). I ended up being stage 3 (1 lymph node affected).

    I did end up having a permanent colostomy (my tumor was very low). That was an adjustment, but is now no big deal.

    I'm almost exactly 2 years post-op now, and feeling good.

    I wish you all the best and please don't hesistate to get in touch or to ask ANY questions.

    Tara
  • kangatoo
    kangatoo Member Posts: 2,105 Member
    taraHK said:

    Hi Skier03,
    I am sorry to hear of your diagnosis, but warmly welcome you to this group. It has been a godsend for me -- full of practical information and also emotional support.

    I was diagnosed with rectal cancer at age 44 (no risk factors, very healthy). My treatment was similar to yours (except that I did have presurgical chemoradiation -- already had 2 kids and not wanting more). I ended up being stage 3 (1 lymph node affected).

    I did end up having a permanent colostomy (my tumor was very low). That was an adjustment, but is now no big deal.

    I'm almost exactly 2 years post-op now, and feeling good.

    I wish you all the best and please don't hesistate to get in touch or to ask ANY questions.

    Tara

    Welcome Skier with big huggie from oz. Stage 2 here(dx o3) with surgery and 6 months chemo following. Jen and I are continually astounded that this rotten disease is affecting so many young people! We are sure that you will find the support here very encouraging. Let us know the chemo meds you are on and how you cope. Once you start chemo be absolutely sure you tell your onc. or clinic nurses if you have ANY concerns. Everyone that suffers side effects have different stories. Making us aware of them will help you get thru this.
    Welcome again to our "family", kanga n Jen

    Kerry.......I find your "older" figure...figuratively and literally quite sexy(Just don't tell Jen I said that...lol!)
  • Kanort
    Kanort Member Posts: 1,272 Member
    Shandle said:

    Hi skier! I'm Wanda. I haven't been here too long but yes, there's a lot of wonderful support. Happy to hear that the surgery went well, but 22 years old??? Bless your heart sweetie. We are all here to listen to your ups and downs and support you with our love. Lets us know how your treatments go. Huggs n prayers ~ Wanda (from Arizona USA)

    Welcome, Skier. I am so sorry that you have become a member at such a young age. I am also stage 3 with 3 out of 31 lymph nodes involved. I remember being told in the hospital of node involvement and the shock that followed that information. However, I am nine months post chemo and am doing great. You will do the same.

    Keep us posted.

    Hugs,
    Kay
  • neeliec
    neeliec Member Posts: 106
    Wow, Skier! sorry that you have to go through this. I too have stage 3C -- 21 lymph nodes cancerous but I'm a bit older!( I have a daughter and son about your age) You are soo young which is to your advantage, I think, because you are healthy and energetic other than this--- right? I have not been given the option of radiation. Only 5FU, leucovorin and oxaliplatin. I start this Fri.Keep us posted. This is indeed a great group of real and honest people. who though we can't meet in person are connecting intimately through our experiences. Welcome! I wish you the best-- and will pray for you as well.
    blessings, neelieC
  • ron50
    ron50 Member Posts: 1,723 Member
    Hi Skier'
    Welcome to our family,I guess when it all boils down age doesn't really matter, the focus in life becomes survival and beating cancer. We are a very determined lot in here. Most people come in for hope and to get it off their chest ,so if you feel like yelling ,go ahead,as for hope I was stage 3 colon with 6 bad nodes that was 7yrs and 4 mos ago ,I am ca free and considered cured ,good luck mate ,Ron.
  • KKLoop
    KKLoop Member Posts: 73
    Wow! I thought Mom was young at 49. I am typeless.......Avastin has got a great reputation. Mom is on it now... Being in the nodes is treatable.....Age is in your favor....Hang in there and this is a great site for info.
  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    Hi Skier,

    Welcome to the site although it is sad that we have to meet each other in this way. I too am new to this site. People in this site are so wonderful and have provided so much support. I couldn't help tearing up while I was reading all the reply messages to my first posting.
    I'm 43 and was diagnosed with stage C/III (6 lymph nodes were infected) and had surgery on March 8. I had a mini-surgery to insert the infuseport and would start my 12-treatment chemo next week.
    It is sad to experience the loss of our health. But, sweetie, it is also good to know that there are solutions for our problems. Oftentimes, loosing something somehow helps us gain many things back to life. I believe that keeping positive thinking and attitudes will help our body produce more oxygen to fight for this disease.
    I didn't have any family here in the U.S. when I found out my cancer. Due to immigration regulations, my mom arrived here to take care of me three weeks after my surgery. During this difficult time, the love and support from my friends have helped me tremendously. The most amazing thing is the faith in God. I will keep you in my prayer everyday. Please be strong; and I believe we will get through this together. Please do not hesitate to let me know if you need someone to talk to or anything.

    Rosa (New York)
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    Hi skier!

    Downhill or x-country?

    Welcome to the semi-colons. We are all things to all people---silly, serious, supportive; a place to: vent, rage, cry, laugh, share--woes, fears, aches, pains, protocols, and our stories.

    I am a Stage 3 lymph pos (2/19) sigmoid colon survivor. I opted not to do any chemo and used Eastern Medicine and Alternatives instead. I have been cancer free for 3 years and 7 months!! WooHoo!! :-)

    I was dx'ed at 39 and the tumor could have been in there since I was 29. My sister was dx'ed at 29 and she had been sick for years. So i know all about the young age thing (for her--not as much for me). It is always a shocker. Ya gotta wonder what is going on in the world that cancer seems to be getting more younger people than before.....I mean colon cancer???

    With my sister they radiated her while she was open (hers was in the sm. intestine) and covered her ovaries. Her first onc was not going to do this and told her she shouldn't have kids anyway. He was fired on the spot and she found someone who would take the precautions to ensure her ovaries would remain healthy. She went on to have a baby!! A very healthy baby girl who is now 13 yrs old.

    Anyway....glad you found us.

    peace, emily