Apr 07, 2005 - 9:49 am
After singular liver resection 6 months ago and diagnosed as Neuroendocrine carcinoma with unknown origin, I did PET/CT 3 days ago and it was suspected that there is recurrence in liver plus new lobules in lungs. I went to the Memerial sloane Kettering affiliate in Hong Kong and they said doing some tests may help diagose Islet cell neuroendocrine carcinoma or Carcinoid. Am now waiting for 5HIAA 24 hour urine result plus another Octreotide test.
There seems many ways to contain growth eg. Sandostatin, Chemo etc but there aren't enough data points to know effectiveness. Do I just have to "bet" on things now. Who might have successful experience or suggestions on which Oncologists to go to for improved odds? MD Anderson? Sloane Kettering?
Some mentioned Dr. Oberge in Uppsula in Sweden but information on him is scant.
Thank you for your help.