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too young for bladder cancer

loveclare
Posts: 1
Joined: Mar 2005

I was first diagnosed when I was 31 and pregnant with my first child. I was never a smoker and am not in any other risk group. There is no bladder cancer in my family. The hardest thing for me to accept is WHY? I had a tumor removed while I was 20 weeks pregnant and recently had 2 more growths removed after they were found during a routine cystoscopy. I am scared and sad and angry, and don't know where to go because I can't find anyone who really understands. Even my doctor, who is the best in my opinion, says I am a very unique case. Is there anyone out there who can relate to me? I don't want having cancer to ruin my life while I am living it.

Canadoll's picture
Canadoll
Posts: 7
Joined: Oct 2004

Hi,we spoke the other day. I hope you are doing well. I found a website with a very similar story to yours. I thought you might want to see it. Here is the address: http://blcwebcafe.org/stories/young_tas.asp
All the best, Sharyl

Military
Posts: 31
Joined: Mar 2004

The University of Southern California has an ongoing study to track a specific gene that has potential for mutating. If this is the case, it may explain why those that have never smoked have bladder cancer. You should seek help from medical centers that have extensive experience in these matters. There has been numerous advances in this field of medicine and at your age your future should look bright.

peteslsspr
Posts: 1
Joined: Dec 2010

Hello,

Going in tomorrow to have stents removed from procedure to look into both kidneys for cancer. 4 positive FISH tests and two bladder biopsies which were negative...took fish from each kidney last time which both were positive...so went in and looked into both and saw nothing. Could they just not see something? I don't get it.

Also - how come they use novacaine for a small cavity but when they go in to remove 2 stents on the other side of my bladder to each kidney, they just expect me to hand tough? Does it take too much time to administer something that minimizes what I am sure to be big time pain? 54 year old...former smoker but quit decades ago...

thanks for the help

ebull
Posts: 1
Joined: Mar 2012

I have blood in my urine - they did a FISH test and it came back positive. So I had a cystoscopy, and she found nothing. Then did a ureteroscopy - took sample from both kidneys. She could only go into one because my ureters were too narrow and had to put in a stent. She did not find any tumors. The results from the FISH test for both kidneys came positive - FOR BOTH. The dr is dumbfounded. She has no idea why I'm getting these results. I'm 33 years old. If they can't find a reasonable explanation, I have to go to Mayo. She has never heard of this before, ever. What else could it be? I'm so confused.

CynthiaA's picture
CynthiaA
Posts: 26
Joined: Feb 2004

I was dx'd with bladder ca in 1996 and have been treated for it ever since. I still have to have a cysto every six mos for the rest of my. I look at my bladder ca as a nuisance, as would be diabetes, or rheumatoid arthritis. It's just something that came along with my lousey gene pool. I've had 6 diff primary site ca's with no mets over the past 16 yrs. What I'm trying to say is, 'welcome to your new life.' I often hear people talk about how they want get back to normal...well, surprise, this is your new life as a cancer survivor. This might sound cold...but, didn't anybody ever tell you that you'd never be the same? I remember when one of my Drs said that to me in 1990 and it made me furious. It finally sunk in after a while and I realized that he wasn't being cruel...just honest. My new life over the past 16 yrs has been a great gift, and I know that I will never be the same. There's no going back. If you would like to talk, you can em me here on CSN under my sign in name...Cynthia A

burcu123
Posts: 70
Joined: Jan 2013

DO not blame your gene pool so fast. It is very possible if you receieved cyclofosphamide for your first cancer that it caused the bladder cancer.

 

CItoxan increases bladder cancer 6 to 7 times. What is sad it it is preventable. A very well known medication called MESNA, prevents bladder cancer in patient receiving Citoxan. Oncologist rarely use it I do not know why. They used it on me foe my breast cancer an my bladder got damaged, I am still suffering while doing research on Citoxan I found out it was preventable with Mesna.

 

AuthorUnknown
Posts: 1564
Joined: May 2006

What kind of bladder cancer do you have? TCC. RCC, CCC? What grade is your cancer? What kind of follow up are you having?

eyes2
Posts: 13
Joined: Dec 2003

Hi
I'm not as young as you,but I'm 52 but I never smoked either. I was diagnosed within 3 months with endometrial cancer and bladder cancer. I had 4 transurethral bladder tumor resections and BCG treatments but the tumors kept growing back and the last one was invading the bladder wall. Well I guess I'm writing to tell you that I did have to have my bladder removed in 2/04 but they made me a neo bladder you urinate through your urethra there is nothing on your abdomin except a scar. I thought at the time my world came to an end but it didn't I have adjusted to my new way of urinating, I also needed a bladder sling and I have to self cather. I'm alive enjoying my triplet grandchildren and functioning in society at this point I'm cancer free and the world did not come to an end. Pleae keep up with your scopes and if you ever need to know more let me know.

foley_mick
Posts: 1
Joined: Aug 2013

Bladder is another important part of our body that helps in disposal of wastes from our body. Bladder is responsible for collecting and storing urine till it is finally disposed off from our body.   spa for men in dubai

lionfood
Posts: 2
Joined: Jun 2005

31 and pregnant must have been pretty scary. I also had no bladder cancer in my family....I was just diagnosed in January, i'm 21. My tumor was classified as high grade papillary urothelial carcinoma. I underwent a TUR and did 6 weeks of BCG therapy afterwards. Have you undergone BCG therapy? I hear its very helpful in preventing reoccurences. How was your cancer classified?

crazydancer's picture
crazydancer
Posts: 3
Joined: Jul 2005

Hi I'm new here, but I could really relate to the title of your post. I am 18, and I was diagnosed in April with TCC. I know exactly what you mean about asking why. This kind of thing only happened to old men...i thought! (haha) I got so sick of going to the hospital and people making comments about how young I was and asking me all these questions. I thought about printing cards out so that I didn't have to keep saying yes people have told me how rare it is for someone my age blah blah blah.... But i've found that things are pretty good. I am a dancer, and I just schedule my cystos around my performances and if they find anything they just cut it out, I do BCG, and that's the end of that for 6 months. I find it pretty manageable, but at first I was so frusterated. I had a tumor the size of a softball removed from my bladder, and I had to have a nef tube in my right kidney, and I felt so restricted. I felt unproductive and pissed off, but I've learned to manage things and look on the bright side...I mean now i have a reason to ride in those motorized chairs in the store!!! So I guess I'm just saying, I know how you feel. I hope to get to know you better!
Hope and Strength,
Karen

katiehague
Posts: 2
Joined: Nov 2011

Hi, I'm Katie. I'm 18 and I was just diagnosed with bladder cancer last month. Most of the doctors I saw spent a good month and a half thinking it was kidney stones, until my pediatric doctor finally ordered an ultrasound. My tumor wasn't nearly as big, but I had surgery to get it out. I'm in the same position now, I have an endoscopic-type procedure every four months to check if the cancer's returned. My first one's in february, I'm assuming it's going to be a smaller-scale version of my surgery. I'm kind of still in shock that I have bladder cancer. I just started my freshman year of college, so it's really been interfering with my life. Everyone has been saying how obscure it is, I'm the youngest person any of my doctors have heard of having this - just like you said, it's normally in an elderly patient or someone who smokes (I don't seem to fit either criteria haha). I have to say though, it could be much worse. I'm worried about it returning, but my future looks alright for now, and as far as I've heard, if it does return, it's fairly manageable and easy to remove. Thanks for the insight, it really helps to see that I'm not the only one.
- Katie

Fran Chandler's picture
Fran Chandler
Posts: 29
Joined: Feb 2010

Hi Katie, They found kidney cancer in 2009 and removed my kidney in Feb 2010. Then four months later they found Bladder Cancer. Been quite a journey! I know that you are for sure young, but it doesn't seem to pick an age anymore. I belong a group called BSCAN Inspire.com. There is over 3000 members and climbing. One little boy is 3 years old!! So like I say I sure wish they could find the cause of all this cancer. I am glad that you are doing so well.Wish you good luck with College. Also pray you continue to have good results with your BC.
Fran

alex1
Posts: 1
Joined: Jul 2005

I was also diagnosed at 31 yrs old with stage IIIb bladder squamous cell carcinoma. I was also told I was a unique case. I had a partial cystecotmy, lymph nodes removed, chemo and radiation. Now a 1 year survivor and making my way in my new life. I would really like to talk to any others willing to share their insights and experiences.

najon88
Posts: 1
Joined: Nov 2005

loveclare-You are not alone- I was 25 and 3months pregnant with my first child when during a routine sonogram, my first sonogram, they discovered I had a tumor on my bladder. I too had surgery during the pregnancy and once after the pregnancy. I too have days that I feel no one could possibly relate to me and what now? I am completly frustrated by the lack of info available to younger people, I am now 34 but at the time of my diagnosis, according to all the research I could fine, I should have been elderly and a man???? I just hope that something finally gives, so that we can atleast be sure that our childrens worries will be less. Another website that is amazing and I am passionate about is pregnant with cancer. I hope this finds you well and would love to talk more.

gigivp22
Posts: 2
Joined: Dec 2009

I was diagnosed two years ago when I was 25. I was in pain for almost a whole year before I found out. I would bleed and dread going to pee because it hurt so bad. My primary care didn't think anything was wrong with me until I finally went to the emergency room. I had a CT Scan and suddenly nurses started hugging me until a doctor finally told me that I had a massive tumor taking up 3/4 of my bladder. I found the best doctor in boston and a week later, I had surgery that lasted around 8 hours. My doctor said that you usually don't have symptoms and mine saved my life. I had stage one cancer and since then I've been getting cystoscopys every 3-4 months. At the beginning of this year he saw a spot and lasered it off and said there wasn't anything to worry about. Well now I just found out again that they are starting to grow back, not spots, but tumors. I am now 27 and I'm going for my second surgery. This time around he is going to remove the tumors and then coat my bladder with kemo. Hopefully this will help me go longer than two years. I just wish I could have more answers to all of this. Is it something we are eating? Is it the fumes from my paint? What, what is it? Luckily I have a great support team. I have a wonderful family and friends.

mrsmichelle
Posts: 1
Joined: Feb 2010

Hi,

I had a TURBT in November to remove two tumours from my bladder. The doctors found them after they'd sent me for an ultrasound to find out why, despite trying for a year, I wasn't getting pregnant. Obviously, it wasn't what we were expecting at all!! The doctors all asked me if I smoked, which unfortunately I have done at different stages in my life, on and off. I didn't fit into the 'category' of bladder cancer sufferers despite the fact that I used to smoke (apparently, it would have to be over 15 cigarettes a day over many years, which I was nowhere near). I'd had severe amounts of blood in my urine since April 07 until around Dec 08 but then nothing throughout all of 2009. Luckily, I'd moved home and had a new doctor as the previous ones had lost my sample results twice and hadn't thought to refer me on to the hospital to find out what was going on. I actually went to the doctors because of a chronic stomach ache I kept getting, which no one has yet confirmed whether that was anything to do with the cancer or not. It's all pretty confusing isn't it? I was asked if I'd worked with chemicals, dyes etc etc - the only dye I ever went near was hair dye and apparently it's nothing at all to do with that. I also asked if it was anything I'd eaten, drunk, did I not drink enough water????? All answers were that those things were nothing to do with it. So I'm non the wiser either I suppose - I'm 36 years old and otherwise healthy. I've got my first cystoscopy in March, which apparently is the all important one. My cancer was Grade 2 Ta. I had chemo the day after my TURBT - having this apparently reduces the likelihood of it returning, at least for a longer period of time than it would have done with no chemo. I don't know if you'll find more info than you already have on this site :- http://www.uroweb.org/fileadmin/user_upload/Guidelines/05%20TaT1%20Bladder%20Cancer.pdf
I believe many people live their whole lives with cancer and die with it, rather than from it. It doesn't make it any less scarey initially though does it?
Your post is from December so I'm presuming you've already had your second surgery, I really hope it all went ok for you. Family and friends have definitely got me through this and I'm sure yours will too.
Kind Regards and best wishes xxxx

tundra_07's picture
tundra_07
Posts: 1
Joined: Jul 2010

hi!
A year ago,at the age of 26,i was diagnosed w/ bladder CA (TCCA type).. i didn't know how to react, it was really something i never thought i would have..it felt unreal..and being a doctor, i knew it was really rare for my age and gender, and i never even have smoked my entire life.. my urologist did only a cysto-TURBT..accdg to him no chemo/bcg was needed since it was only superficial, and i was glad to hear that.. though my other fellow doctors thought i should've had the chemo, i trusted him, and i also read that resection was enough in superficial tumors..but then again,i was still doubtful about the findings..was it really cancer?..i kept saying to myself maybe they just made a mistake about the biopsy..
when i had my follow-up cystoscopy 3 months after, it was clear and no tumors were found... i became less worried and thought that probably this was all indeed just a mistake since i never fit any of the risk factors..i was probably in denial back then..i wasn't thinking like a doctor at all..
i became less compliant with my next follow up (as they say, doctors are usually the most difficult of patients), and instead of having my follow-up cysto 6 months after, i failed to return until it was 10 months later since my last procedure..and so my urologist scheduled a repeat cystoscopy last week..we were both confident that it would still be negative, and agreed that my procedures would be less frequent thereafter if ever it was indeed negative..i was even thinking of not having another procedure at all after that.. all i can think about was that it was all just a big mistake..
but to both our disappointment, he found a new growth at a different site from my first one.. that's when it really struck me that this was really for real..my friends and family have been supportive all through out..but i still can't help but feel scared.. i'm still awaiting biopsy results, but now i'm preparing myself for a possible chemo and a lifetime routine cystoscopy, ..i've been researching about bladder ca in the young, and i was actually really glad to have found this thread..it feels nice to actually read from stories that i could actually relate to..i don't know anyone else from here who's a young, non-smoking female w/ the same condition as i have..i've seen patients w/ bladder ca and they were all male in their late 70s-80s..and every time i wait outside my uro's clinic, i'm surrounded by elderly men..it felt like i was misplaced, just like my bladder cancer..misplaced...
tomorrow i will be getting my biopsy results and will be awaiting my uro's decision for my management..all i can do now is pray....thanks for reading..it felt a little bit better airing this out to people who could relate to what i'm going through..maybe i would be able to sleep after this..it's 5am here..the sleeping pill i took 3 hrs ago didn't work..lots of thoughts in my head...
would love to hear updates from you guys too :) God bless to all of you..

justmejulie
Posts: 1
Joined: Jul 2010

Have you been checked for Lynch Syndrome? My husband also had bladder cancer in his early 40's They also said he was young until 4 years later he came down with colon cancer and did a blood test and founf that he had Lynch Syndrome. And it can cause a lot of different cancers at a early age like bladder, colon, stomach, lung, liver, brain, and skin cancer and for females its overies also. He was tested and had a positive result so we had a 50/50 chance of our kids having it too. 2 have been tested and the both have the gene.

Good Luck
Julie

loveslife_24
Posts: 8
Joined: Aug 2010

hi sorry to hear about ur troubles. i am 24yrs old and have recently been told that i have abnormal cells on my bladder which are in the first stages of bladder cancer. i was given the b.c.g treatment for 6 weeks but was then told afterwards that this had not worked. i then got referred to a specialist oncologist in liecester (U.K). he told me that he wanted me to have a c.t scan and a m.r.i scan. i have just found out im 5 weeks pregnant and i was not allowed to have my scan done. now my specialist wants to see me but he has asked me to take my mum along... i cant help thinking hes gonna say that its not safe for me to continue with the pregnancy but ive seen that you had treatment while pregnant. were the doctors ok about you continuing with treatment while pregnant and did u have any problems. i dont know what the specialist is gonna say but do u think i should ask for a second opinion?? i hope to get in touch soon. and i hope evrything is ok for you. x

loveslife_24
Posts: 8
Joined: Aug 2010

hi sorry to hear about ur troubles. i am 24yrs old and have recently been told that i have abnormal cells on my bladder which are in the first stages of bladder cancer. i was given the b.c.g treatment for 6 weeks but was then told afterwards that this had not worked. i then got referred to a specialist oncologist in liecester (U.K). he told me that he wanted me to have a c.t scan and a m.r.i scan. i have just found out im 5 weeks pregnant and i was not allowed to have my scan done. now my specialist wants to see me but he has asked me to take my mum along... i cant help thinking hes gonna say that its not safe for me to continue with the pregnancy but ive seen that you had treatment while pregnant. were the doctors ok about you continuing with treatment while pregnant and did u have any problems. i dont know what the specialist is gonna say but do u think i should ask for a second opinion?? i hope to get in touch soon. and i hope evrything is ok for you. x

loveslife_24
Posts: 8
Joined: Aug 2010

hi sorry to hear about ur troubles. i am 24yrs old and have recently been told that i have abnormal cells on my bladder which are in the first stages of bladder cancer. i was given the b.c.g treatment for 6 weeks but was then told afterwards that this had not worked. i then got referred to a specialist oncologist in liecester (U.K). he told me that he wanted me to have a c.t scan and a m.r.i scan. i have just found out im 5 weeks pregnant and i was not allowed to have my scan done. now my specialist wants to see me but he has asked me to take my mum along... i cant help thinking hes gonna say that its not safe for me to continue with the pregnancy but ive seen that you had treatment while pregnant. were the doctors ok about you continuing with treatment while pregnant and did u have any problems. i dont know what the specialist is gonna say but do u think i should ask for a second opinion?? i hope to get in touch soon. and i hope evrything is ok for you. x

loveslife_24
Posts: 8
Joined: Aug 2010

hi sorry to hear about ur troubles. i am 24yrs old and have recently been told that i have abnormal cells on my bladder which are in the first stages of bladder cancer. i was given the b.c.g treatment for 6 weeks but was then told afterwards that this had not worked. i then got referred to a specialist oncologist in liecester (U.K). he told me that he wanted me to have a c.t scan and a m.r.i scan. i have just found out im 5 weeks pregnant and i was not allowed to have my scan done. now my specialist wants to see me but he has asked me to take my mum along... i cant help thinking hes gonna say that its not safe for me to continue with the pregnancy but ive seen that you had treatment while pregnant. were the doctors ok about you continuing with treatment while pregnant and did u have any problems. i dont know what the specialist is gonna say but do u think i should ask for a second opinion?? i hope to get in touch soon. and i hope evrything is ok for you. x

loveslife_24
Posts: 8
Joined: Aug 2010

hi sorry to hear about ur troubles. i am 24yrs old and have recently been told that i have abnormal cells on my bladder which are in the first stages of bladder cancer. i was given the b.c.g treatment for 6 weeks but was then told afterwards that this had not worked. i then got referred to a specialist oncologist in liecester (U.K). he told me that he wanted me to have a c.t scan and a m.r.i scan. i have just found out im 5 weeks pregnant and i was not allowed to have my scan done. now my specialist wants to see me but he has asked me to take my mum along... i cant help thinking hes gonna say that its not safe for me to continue with the pregnancy but ive seen that you had treatment while pregnant. were the doctors ok about you continuing with treatment while pregnant and did u have any problems. i dont know what the specialist is gonna say but do u think i should ask for a second opinion?? i hope to get in touch soon. and i hope evrything is ok for you. x

loveslife_24
Posts: 8
Joined: Aug 2010

hi sorry to hear about ur troubles. i am 24yrs old and have recently been told that i have abnormal cells on my bladder which are in the first stages of bladder cancer. i was given the b.c.g treatment for 6 weeks but was then told afterwards that this had not worked. i then got referred to a specialist oncologist in liecester (U.K). he told me that he wanted me to have a c.t scan and a m.r.i scan. i have just found out im 5 weeks pregnant and i was not allowed to have my scan done. now my specialist wants to see me but he has asked me to take my mum along... i cant help thinking hes gonna say that its not safe for me to continue with the pregnancy but ive seen that you had treatment while pregnant. were the doctors ok about you continuing with treatment while pregnant and did u have any problems. i dont know what the specialist is gonna say but do u think i should ask for a second opinion?? i hope to get in touch soon. and i hope evrything is ok for you. x

loveslife_24
Posts: 8
Joined: Aug 2010

hi sorry to hear about ur troubles. i am 24yrs old and have recently been told that i have abnormal cells on my bladder which are in the first stages of bladder cancer. i was given the b.c.g treatment for 6 weeks but was then told afterwards that this had not worked. i then got referred to a specialist oncologist in liecester (U.K). he told me that he wanted me to have a c.t scan and a m.r.i scan. i have just found out im 5 weeks pregnant and i was not allowed to have my scan done. now my specialist wants to see me but he has asked me to take my mum along... i cant help thinking hes gonna say that its not safe for me to continue with the pregnancy but ive seen that you had treatment while pregnant. were the doctors ok about you continuing with treatment while pregnant and did u have any problems. i dont know what the specialist is gonna say but do u think i should ask for a second opinion?? i hope to get in touch soon. and i hope evrything is ok for you. x

loveslife_24
Posts: 8
Joined: Aug 2010

sorry im new to this, didnt mean to print my reply that many times.

Skid Row Tom's picture
Skid Row Tom
Posts: 118
Joined: Apr 2010

You can't go wrong with a second opinion. With a decision this big, I think a second opinion is a MUST. If you make a major decision like this without a second opinion, you will always be second-guessing yourself. Good luck!

irishrosecork
Posts: 1
Joined: Dec 2010

Hi and thanks for everyone posting their stories. I was diagnosed with bladder cancer at the age of 25. Im now 43 and have been cancer free since however, I'm woundering if anyone has found what the recurrence rate is in young people diagnosed at an early age. My mum died last week from ovarian cancer, my eldest sister was diagnosed with breast cancer last year and no family history of cancer except us girls. My sisters cancer markers were negative for being hereditary (spelling) and my gyn said the type of ovarian cancer my mum had is not hereditary. So why the post? Im scared not only for myself but my 3 children and 2 grandchildren. I do get cysto's regularly and the only treatment I recieved was the tumore removed from the bladder. No chemo was needed. Thanks for any feedback.

SHarrington1
Posts: 1
Joined: Jan 2011

I too was diagnosed when I was 18 years old. Its all i could think about at the time and I was so scared. they removed a golf ball sized tumor out of my bladder months ago. however, after my last biopsy they found no cancer in my bladder whatsoever. I am still starting the BKG treatments in april as a precautionary thing. not excited in the least.

kathrynjenkins
Posts: 10
Joined: Dec 2008

Hi,
I'm Kathy, age 59, and I was dx in 2002 with baseball size tumor that was a sage 1 TCC and was removed by surgery. I was soon given BCG treatemts for 6 wks. which I tolerated very well. I had a small flare-up in 2004 and when the Dr. removed it he treated me with mytomycin and luckily I have not had any problems with my bladder ca since. However, I was diagnosed with Stage 0 melanoma on my left arm in 2008. It was a mole about the size of a bb and black. I had 20 stitches to remove it but have been assured that it has nothing to do with my original ca and that I am cured. My life has been somewhat of an obstacle course but I have taken it on with a vengence with the help of my support syste. Take good care of yourself and get on a good anti-depressant and sleeping aid. In my opinion they are imperative for your mental health when facing this difficult time in your life. Right now I know that you can't ever imagine a time in your future when you don't worry about cancer but I can honestly say that I rarely ever think about it anymore and am enjoying a very good quality of life.

sam908
Posts: 1
Joined: Aug 2013

Bladder cancer is any of several types of malignancy arising from the epithelial lining.  classic car restoration los angeles

n_daly
Posts: 2
Joined: May 2011

I was diagnosed when I was 30. I am scared of getting it again. It has only been 4 months since I had found out about it. I lossed alot of weight and I am still having trouble getting it back. I am so scared that I will get it again and die.

shondo61
Posts: 1
Joined: Sep 2011

Hi! I was diagnosed with bladder cancer in 1996. I had two young children and so much to live for. My Consultant offered me a Neo Bladder and removed 2/3 of my original bladder. That was 15 years ago and I have never looked back! I still pass mucous and it can be difficult to diagnose a UTI but that is such a small price to pay.

TheMule
Posts: 1
Joined: May 2012

Hi. I was diagnosed at 25 with TCC stage 1. I, like many on this board, experienced pain and bleeding for close to a year. I was treated for UTIs over and over again until my PCP sent me to a urologist (only after I needed a blood transfusion). I had a resection of my bladder at that time. I have had to schedule cystoscopies regularly since. It used to consume me. I would think about all the things that could go wrong. I asked the "why me" question so many times. I would panic every time I went in for a cystoscopy, expecting the worst. There wasn't this board, nor any other support for me. I felt so alone. It lasted years but it gets better. It's been over 15 years now. I still have to schedule cyctoscopies but I don't panic anymore. You get used to your new "self" and learn to deal with it, slowly, over time. You have to. It's the new you and you have experienced something traumatic and unusual. It's a slow process. It's an education in medicine and dignity. It gets better. You won't die. You are young and strong and medicine is excellent. You will survive this.

iznuhdj
Posts: 1
Joined: Jun 2012

do not worry about cancer

mommysam
Posts: 1
Joined: Nov 2012

I am not sure that I will be fighting cancer anytime soon. But there is some cause for concern. If you have the invasive type of bladder cancer that can spread to other place like your female organs, would they pick that up in a pap smear?? Or can you get more than one type at a time?

I started having trouble back in 09 and I went to see a Urologist. I was diagnosed with IC/PBS without any ruling out of anything else and I have fought UTIs since I was two years old.

Once the bladder trouble started, colon problems started. Then when I was pregnant with my second child, I had alot of pregnancy complications which was almost 7 months ago. I have never been told that there was ever anything wrong with my cervix, but a recent pap came back abnormal and I have to go in for further testing.

I am just a little freaked out because I have been otherwise healthy and I have two small children that depend on me and I want to know more information on rather or not all of this can be linked?!?!

You guys are amazing and helpful some maybe someone knows or can relate and help me make the right decisions on what doctors to see and what questions to ask.

jessebenedetti
Posts: 1
Joined: May 2012

Im jesse, im 33 and in march of this year i was told i have had bladder cancer for the past 2.5 years unknown to me and the doctors kept telling me it was UTI. Finally in a cysto they found the large tumor and then went thru BCG and was clean and in Sept before my next treatment they found 3 new tumors. Ive just finished my 2nd rd of BCG with interferon(sp) ....ive never smoked...and dont have any reason to have this, except what the Dr told me was just "bad luck". Its so hard to graspt this and no one out there seems to understand this so its hard to talk to others. Hope this finds you in good health and look forward to chatting.
Thanks
Jesse

fillpotforever
Posts: 2
Joined: Jan 2013

Hi, I am new here but I am scared and was researching Bladder Cancer when I came apon this.  I am 30 yrs old and my Dr. told me the other day she thinks I have bladder cancer.  This all started when they thought I had kidney stones and have been treating me for stones for about a year.  They finally did a CT and didn't find any stones but I still have blood in my urine.  I have pain in my lower back and abdomin and they have already ruled out and infection.  I don't know for sure that I have it but when my Dr told me that I kinda have sunk into this depression.  I am scared and my husband is scared.  I have been sad, mad, even skeptical.  My appt with a Urologist isn't till Feb 12th and today is Jan 24th.  That appt seems so far away.  Can anything get worse in that amount of time?  I really am new to all this.  I have beaten Cervial cancer with just a hysterectomy.  This I have found so far would lead to more then surgery.  I guess I am just really terrified about this.  Any ideas on how to cope till I find out for sure? Please any ideas are welcomed. 

RPorter
Posts: 1
Joined: Aug 2003

I am amazed at how much our stories are similar. It really helped to read your post. I too am a cervical cancer survivor of 10 1/2 years. I have HPV and my cervical cancer was adnocarcinoma (a glandular type)I had a total hysterectomy at 28 no chemo either luckily. I've had blood in my urine for 2 years now and I too have had a CT scan for kindney and gall stones and they've found nothing. AT my urologist appt. he also found white blood cells but there was no infection. You're right the waiting it almost too much. It seems that it is a month between appointments. If you don't mind me asking how did your appointment go? I am scheduled for a cystoscopy next Friday and it seems I'm stressing more the closer I get to the appointment.

I've been doing a lot of research on line while I wait, but I'm not sure if this was the right thing or not. I've found some studies that link HPV to bladder cancer and the similarity of adnocarcinoma and bladder cancer had me feeling more like it will be bladder cancer. I guess I cope better by facing things head on. I've started a list of questions for my doctor and I can say it has helped me sleep a little better feeling like I'm taking control and not sitting back and just waiting. So being prepared for the worst and hoping for the best has seemed to work for me. I hope you have gotten some answers to ease your mind. I'll keep you in my prayers. Please keep in touch. It helps to know you are not alone in the fight!

 

~Rose

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