Mar 10, 2005 - 6:00 pm
Hi everyone, Last week I had a petscan done. I have this on going problem with the right sacral ala area. Although I am not having any pain, I have had 2 Mri's and a petscan of the pelvic bone which showed an insufficincey fracture or it could not rule out bone metasis. In Feb.2005, the mri of the pelvis showed no change in the right scaral area but also picked up another new area on the left side. It recommended a petscan which I had. The results state nonspecific findings within the right sacral area ala. Considerations include a healing fracture or low grade tumor acticity. Tumor is thought to be less likely due to mild hypermetabolic activity and solitary lesion. The activity this time had a SUV of 3.1. None of my other petscans showed this previously. As this is something new. Nothing showed up on the left side either as the mri suggested. Anybody know about this SUV. My.Dr.said he would begin to worry if the SUV was a 7 ?? On the otherhand I did go to Florida for the first time and proved to myself you can travel with all these bags on my abdomen such as illeostomies,draining mucous fistulas etc. I got on that plane and felt like a real vactioner. It was wonderful. MY blood count or the HGB was 8.4 when I came back. So now I am on predisone again to be saved from a blood transfusion. I have to go back to Sloan Kettering for this blood disorder issue agin as it has not been solved. Anyway good to read everybody messages. I am thinking of all of you guys everday.