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Liposarcoma on the left thigh
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Feb 25, 2005 - 3:38 am
I was diagnosed with liposarcoma on the left thigh when I was 30 years old(1992). My tumor was due to my negligence at the time, left to grow to massive proportions(17cmX12cmX5cm). It was surgically removed at the time by wide local excision and followed by 3 rounds of local chemo and 1 round of general chemo. I remained tumor free up to 1 month ago when I felt again something growing in exactly the same area of the previous wide excision. Subsequent ct and Mri showed that I had no metastases but surgical removal by wide excision again showed the same myxoid type2 liposarcoma(2.5cmX1.8cmX1cm)as 13 years ago. My doctors are confused on how to proceed with this. Their opinion varies to whether this should be treated as a new tumor or as a recurrence after 13 years. Treating this as a new tumor means no subsequent treatment since all margins of the wide excision are around 2cm and considered safe. treating this as a recurrent tumor means that radiation is needed but with all I hear about the side effects I am cautious to proceed. My new incision is about 30cm long and apparently I will have to be exposed to a lot of radiation. Any experiences with post op radiation will be greatly appreciated. Also any references please where I could get some definite answers would also be greatly welcome. Stay clean and be strong Best regards |
Joined: Dec 2012
I am hoping that someone out there can help me. In 2010 I noticed a large swelling on my left thigh. I had been walking over 4 miles a day at a pretty good clip so I thought I had a swollen muscle. So by the end of 2010 I decided I had better have it looked at. I had an MRI and the radiologist said it was a lipoma. So I had surgery on December 22 2010 to remove the "lipoma" by a general surgeon. He told me the tumor was over 22 cm and deepp since he had to cut muscle to free the tumor. When I went back to the surgeon in Jan. 2011 he told me it was cancer and that he was setting me up with an Oncologist and a Onocology Surgeon since the margins were positive. I went to Indiana University in Indianapolis and the surgeon told me it was low grade but he was concerned by its size. He did a local wide excision (shaving muscles). He recommended radiation to ensure no further cells remained (insurance). I had 6,000 Rads of radiation. I was burnt to a crisp and it damaged my lymph nodes. Now I have Lymphodemia in my leg. I finished radiaion in May 2011. When I went for a followup CAT scan at IU in August 2011 and I had an 8 cm tumor close to my hip. In September 2011 he went in and "got all tumor he could see". He had to remove my Rectus Femoris and Satorius muscles. When the pathology came back I had positive margins deep (and quite a lot) and close margins superficially and laterally. He wanted me to have additional radiation and my Radiation Oncologist said no. So since I have had 2 MRIs with contrast and other than scar tissue and fluid nothing has been detected. I am nervous about these positive margins. Now my Oncologist Surgeon is on Indefinite Leave of Abscence. I really don't know where to turn. I am so nervous having this stuff in my leg. Can anyone out there provide me some guidance????
Joined: May 2013
2 years ago, I got this. I let it go 2 1/2 years before diagnosed. Had outpatient surgery.
I had no post surgery meds., no chemo, no radiation. It was a long tumor
(maybe 5 inches). (Tumor became infected + bled before the surgery.)
Since surgery I have a little spotty leg numbness and a little "hand stupidity."
I work, drive and do everything as if I never had this thing.
I am 58 yrs. female. Today, I still am taking no meds of any kind.
I am doing great.