Hello everyone. I am up early took 2 xanax last night and getting ready to go to work. I find comfort writing my feelings on this message board. ALL of you out there are a God sent and have a true understanding of all the anxieties with this disease. To update you I had an MRI of the lumbar spine on Saturday. I have been having pins and needles feeling throughout the butt area and down the legs and lower spine. My oncolist called me last nite with the results of the MRI. It seems to show the same thing in comparison to the DEc.30,2004 MRI of the pelvis. It was an insufficency fracture of the right sacral area vs
rule out mets to the bone. However the lower spine is okay. He also said the report now showed the same type on insufficience fracture laterally on the left side which was not there back in DEC.2004. He said it is very unusual that if it is a mets to the bone, why is it in the other side laterally to the right side. He asked how I was feeling and if I was in alot of pain. I said I am not in pain but I do know something has not been right since Oct.2004. I even had a catscan of the pelvic bone where it showed no masses but was inconclusive of the right sacral area calling it sclerotic changes. HE the said to get a petscan and see if it lights up. He also said to go to Florida and do it after I get back. I do have an appt. with the hematoligist at Sloan Kettering on Friday for the bone marrow issue(the pelvic area not making red blood cells). Maybe all this is connected. I am not the type of person to sit and wait. I want answers. I am going to see if I can get this petscan this week.
My gut feeling that it is in the pelvic bone. The cancer that I had it was a shock to them all in Aug.2003. about the size and the spread. Every case is different. The way I have been feeling I am positive it is in the bone but don't want to believe it. Has anybody had similiar experiences with these MRI's and catscan of the pelvic bone?
Maybe it could be the effects of radiation? But I had the radiation last year and did well with taht with no problems. I am just grasping for positive thoughts. This will delay my trip to Florida for sure. My DR. seems to think if it was in the bone I would be in alot of pain. I am very scared at this point and am looking for support.I think of all you guys all the time and what you are going thru. Your friend Fran