Dec 28, 2004 - 3:55 pm
My 25 year old husband was diagnosed with Primary Sarcoma of the Brain in August. He underwent surgery to remove the tumor on August 28, 2004. It took the pathologists three weeks to make the diagnosis at which time the tumor had already came back. They scanned his entire body and didn't find the cancer anywhere else (very rare to only be in the brain). He underwent a second surgery and a week later 30 radiation treatments. We are patiently waiting for his follow-up scans on January 12th. If anyone else knows anything about Primary Sarcoma of the Brain or has dealt with it please contact me. It feels like we are all alone. Thanks!