Dec 20, 2004 - 1:26 am
Jeez, does this out-of-control roller coaster ride ever slow down????
Jerri is now 7 1/2 weeks past her surgery (removed a foot of lower part of colon; complete hysterectomy; a soccer-ball-size tumor on each ovary--one had ruptured before surgery; removed lymph nodes closest to the colon that tested positive; the doctors felt good that they had removed all visible cancer) and is healing quite well. She lost 40 pounds, but is now maintaining a steady weight. fatigues VERY easily and has a lot of achiness.
She was supposed to start chemo (5FU; luekovorin and irinitecan (sorry about the spellings) on Dec 3rd. When we showed up (after a horrible weekend of anxiety and nervous anticipation), we had questions we wanted answered before the chemo was plugged in. Good thing Jerri insisted on asking the dr her questions first!!! Since the CT and pet scans came back clear, and the colonoscopy was clear, Jerri and I thought maybe the chemo could be scaled back to a milder dose.
The answer we got really set us back. Turns out the chemo doctor had not yet seen the results of the pet scan or the colonoscopy. After she reviewed the results and consulted with a radiation onc, she informed us that the treatments would actually become more aggressive now. Apparently the treatment she proposed to us at first, before the pet scan results were in, was merely intended to extend Jerri's life by x-number of months, because the doctor fully expected the pet scan to show significant spread. Since the scans were negative, the chemo dr wanted to get more aggressive and treat this as they would treat a stage-2, hoping for a better chance to control this thing. I know this is supposed to be a good step, but this whole thing is very nerve racking.
Last Monday Jerri started a six week treatment program of radiation (5 days a week) supplemented with 5FU administered by a portable pump, 24 hours a day, 5 days a week. Then a month month off, new scans, and possibly a new round of chemo for six months.
Ohhh, we also found out her cancer does not produce the CEA marker. Great. So, other than scans, which, I gather from your postings and from doctors aren't all that accurate, we have no way to track her progress. Kinda' like driving on a pot-hole filled road at night with no headlights.
She's starting to feel some of the side effects I think. Nauseau after eating mainly, but it's only been one week. Can't wait for the rest to start.
Lisa...you'll be pleased to know Jerri's going to start on some of the nutition stuff in one of the books you've suggested, with concurrence from the doctors. No anti-oxidants though. Jerri wants to buy a juicer. Her ob/gyn suggested herbs for hot flashes/night sweats instead of hormones. More to learn.
Well guys, thanks for letting me ramble on. I read all the postings and try to take in as much as I can. You're a good group.
I hope all of you have a really good holiday season.