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Biopsy of thymus

Jade1348
Posts: 1
Joined: Dec 2004

I am 56 and have an enlared thymus. My surgeon said that he wants to remove the thymus because the procedure would be the same for the biopsy meaning cutting the breast bone. Please I am so scared is there anyone out there who has had this surgery done? I have had a cat of my chest and thats how they found the enlargment. He didn't tell me to have any blood tests done or a pet scan. I don't understand why he wouldn't want a pet scan done? Dosn't that show cancer? Please if anyone can help please contact me. Vikki Jade1348@aol.com

MScharf
Posts: 2
Joined: Jan 2005

My husband was diagnosed with malignant thymoma 10 years ago. It started with the thymus. He has been off and on treatments for all this time. He has had many different tests and treatments.

Tonky
Posts: 4
Joined: Jul 2004

Vikki,

I know it has been months since your post back in December. I was just browsing this site and found it tonight.

My husband was diagnosed with malignant thymoma exactly 9 years ago. He had a median sternotomy (cutting the breast bone) in April of 1996 to remove the thymus gland, which was encapsulated to the size of a tennis ball, malignant, and metastized into much of the fatty tissue in his chest. I will not go into the particulars of the many treatments he has had, but his general health now is in reasonable condition considering all this, but we are in a clinical trial in Indianapolis, hoping that this treatment will halt the new tumor growth. We will know in a couple of weeks.

I am sure that you have already made your treatment decision by now...I trust that you are doing well. There is a great thymic cancer site:
www.thymic.org . Our group is small, but very knowledgeable and supportive. If you have been diagnosed with malignant thymoma, or just wish to join us, please feel free to do so. Our forum is on Yahoo! groups.

Best of luck to you.

Jane (Tonkyii)

h3llo6
Posts: 1
Joined: Oct 2005

Jane,
I saw your posting on csn. I was diagnosed in 1998 with MG and when they went into get the tumor they found cancer. I have gone through many treatments over the years but I am still here kicking and screaming. I hope the same is for your husband. I go to Doctor's at Fox Chase Cancer Center but they did want to send me out to Indianapolis also. I have had 3 surgeries, 32 radiation once and 25 another and 9 cycles of chemo. I am back to work, working full time and taking care of my Dad with Alzehiemer's. It would be good to talk to someone from time to time who knows about this cancer. Everyone looks at you strange when you say what type you have. If you said you had breast cancer people would understand. I will be thinking of you and your husband. Regina Mattai

deanvalentino
Posts: 1
Joined: Apr 2005

I can tell you this my dad had his thymus removed about 10 years ago and had sum chemo treatments and did lived a normal life for 10 years. recently it has come back been a little tougher this time.

OncoSurge
Posts: 21
Joined: Oct 2009

I know this is an older posting.
I just thought for those newly diagnosed, there are significant advances in minimally invasive surgery. Often, this will mean you don't have to have your sternum (breast bone) split/sawed open. Biopsies and/or thymectomy can be performed with "VATS" and robotic surgery.

The new minimally invasive techniques have also been very useful for Myastenia Gravis patients.

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