Nov 11, 2004 - 7:45 pm
Well, as I promised I said that I would let you guys all know how we made out Wed. at the Dr. Well, I am sorry to say it isn't good. I hate to keep posting bad news but I was told to post no matter what! Well, here goes. Bob isn't doing well at all. He is losing weight fast!!! He is the same as far as the scale is but it is all fluid in him belly. In the last week he has gone from looking 3 months pregnant to looking 8 months. He is very unconfortable. The Dr. wanted to start him on constant pain med using a patch but Bob refused. He said that he would continue his pain control the way things are now. He is very weak and not wanting to eat. He is sleeping most of the day now. Bob asked the Dr. about finding any place that could do anything in the experimental phase. His Dr. said that he wasn't sure do to him being in such poor shape. He said that he was waiting to hear from the center in New Brunswick,NJ and he is going to call the center in Illionis. I is GREAT that his Dr. isn't giving up on him but he is also being very honest with Bob about his chances of qualifing. He is still working on Bob's meds for Depression. I brought this up to him a month ago and so far everything we have tried as far as meds go to improve his emotions haven't worked. Bob has been on Antidepressants since Nov. last year. They were doing the treak until about 1 1/2 months ago. They also did a liver test to see how much of his liver is still working or what might be going on there and I got the results but his Dr. is off today and his Asst. was at lunch and I had to get back to work, so I have this piece of paper and don't know what the H----is means!!!! I will put a call into his Dr. tomorrow to get it explained.
The nurses new something was up when he went into the office and he didn't give them a hard time as trying to make them laugh. They couldn't believe how fast he went down hill in a week.
I am not giving up on him but my hope level is very low right now. He is doing so poorly and everything we try doesn't seem to help.
I am afraid that I am losing him!!!!! Can anyone try to explain to me what is happening to my best friend?
I'm sorry that I couldn't give you better news!!!! But you guys told me to post no matter what!!!!
Please pray for Bob and give me the strength to get through this no matter what things turn out to be!!!!
Best Wishes to everyone and THANK YOU for being there for us!!!!
Love to ALL!!!!