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Posts: 3
Joined: Oct 2004

In July I had half of my liver remove due to neuroendcrine cancer that apparently originated in the liver.
I am having a very hard time with my recovery. I had colon cancer surgery before and that was piece of cake compared to this. Is there anyone I can talk to?

Posts: 1561
Joined: May 2006

Hello, my name is Dana and I am one of the online community specialists. You may want to contact the American Cancer Society's National Cancer Information Center. They may be able to assist you in finding additional resources to find individuals to talk with. Cancer Information Specialists are available 24 hours a day, 7 days a week at 1-800-227-2345.

You may also want to do a search of personal web pages to determine if there are others you wish to make email contact with.

All the best,

CSN Dana

Posts: 9
Joined: Mar 2005

I myself am plagued with nueroendocrine tumors. Mine cover both front and rear lobes of the liver. Surgical removal is not an option. In the past year I've been through 34+ chemo therapy sessions consisting of Carboplatin, BP-16, Streptozotocin and 5-FU. None of these had any effect. I just completed 2 consecutive months of Hepatic Artery Embolizations. This is a process where blood supplies which feed the liver are blocked and obstructed. It really is a painful experience. The liver really gets angry when you start shutting off its blood supply. The tumors get rather pissed as well. Being that the tumors are so sread out upon my liver, sugrgical removal is not an option. I myself hope for the day when or if the tumors can be beaten down to a size where they can be surgically removed. In many ways you might want to consider yourself fortunate.

Posts: 22
Joined: Mar 2005

May I ask what state you are receiving treatment in? My dad was just diagnosised with liver cancer that orginated in the colon. He is doctoring at Barnes in St.Louis. They are going to begin chemotreatment in a few weeks as soon as he recoups from colon surgery. The oncologist told him they are going to use a new chemo drug just recently released by the FDA but I do not know its name. How long since you were diagnosed? They told him if this did not work there would be nothing they could do. I'm wondering if that is true. Sounds like they have tried several things in your case...is that because of the type of cancer it may be?

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