Sep 12, 2004 - 7:24 pm
It has been almost 2 years since I had a good sized Sarcoma removed from my small intestine taking with it 6 or so inches near the ileum. I was fortunate that the tumor was very low grade and showed not evidence of metastic disease, so there was no follow up or chemo treatments suggested. The surgery was unremarkable and my recovery was excellent. What the doctors did not say and I am still having a difficult time in dealing with is what my day to day post operative symptoms would be, particuarily involving digestion, absorption and the like. I have periodic episodes of all the unpleasant gastric symptoms in the book and my GI doctor keeps saying "your fine" but never gives any info beyond. Is this going to be my life going forward (don't get me wrong I am thankful to be going forward) but need some input on symptoms/expectations. It is enough to be concerned about having a possibilty of a return, but life would be easier if I knew that my daily symptoms were a result of the surgery.