Sep 01, 2004 - 10:39 pm
Hey all, I was diagnosed with T1 bladder cancer this summer, at the age 21. Every doctor I have spoke to has never seen anyone as young as me with such an illness. I had a 1.5mm tumor removed and during the procedure it was noticed that there were malformations in my urethra. A biopsy was taken and returned positive for cancer. I have been going through modified BCG treatments, in order to deal with the urethra cancer. Instead of holding the BCG for the usual 2 hours, I have been holding for only 45 min and while urinating using an incompetence clamp to hold the BCG in the urethra for as long as I could stand. That proved to be very painful. 4 weeks into the treatment I had to move back to college and sought out another doctor to finish the treatments, and after reviewing my case, he denied the treatments. He reasons made lots of sense and explained all the pain and discomfort I was having. By holding back the BCG in the urethra it was causing a reflux into my prostate tubules and seminal vesicles causing inflammation and pain in my prostate and testicles. So I am now no longer using BCG and taking an array of diffrent medications in order to reduce the pain and inflammation.
Well that is my story. If there is anyone else who is close to my age I would be surprised and love to hear from you. And if anyone else has a recommendation for me please share. I would love to see what else other people have to say. Thanks for reading