I am a 56 year old female with T3 stage 3 bladder cancer. I had surgery last week that was supposed to be be for a superficial papillary tumor.
It turned out to be worse.
OK I have been reading everything that I can Get my hands on about my cancer and the neobladder.
I have a 10 yearold so I have a lot at stake here.
I have had a hyterectomy 10 years ago, so I guess that could be good or bad. This particular surgeon told my family right after the surgery that he had got it all, but on Friday the 13th told me it was a T3. He said it was the smallest T3 he had ever seen. What exactly does that mean I wonder. Anyway, I called my husband to come to the hospital and he asked to speak with the doctor.
The nurse came back in and told us the surgeon had said he would talk with us next week when we had an appointment.
Needless to say we called a friend who is a doctor and he made an appointment for us to see his own urologist. This urologist is the one that operated on President Reagan. I faxed a permission slip to medical records at the hospital where I had the surgery in order for them to to send them to the new Doc.
So, here I am looking for answers to questions that I am not sure of.
I have to wait until the new Doc gets all of my reports.
From what I have read am I correct to assume because the original surgeon said T3 grade 3 that I am going to lose my bladder?
Would it make a difference if the tumor was localized in the one particular area. Or if it had not went completly through the bladder wall.
I am so confused and angry that I got a surgeon that was not interested in answering any of our questions when he gave us the news.
One of my questions is how is it with the neo bladder? How long was the recovery? Are there lingering problems? How often do you need to catherize? When you do catherize is it painfull?
How do you manage when you travel?
Anyone that has had a neobladder please let me know.
Thanks Patti (Blondie)