Aug 09, 2004 - 12:03 pm
I thought I would post an update on me and give a thank you to you. Had I not found this site, and read the stories of other survivors such as myself I know my road would have been a much harder one to hoe - THANK YOU EVERYONE! We are all the strongest people we will ever meet, without doubt.
I am now half way through Folfox 4 for the stage III colon cancer that I was diagnosed with in May, 2004. I had a horribly rough go with nausea and fatigue after my first two treatments. The past 10 have been a breeze, again thanks you to. I read a post on this board that talked about changing the infusion rate of the Oxal. and I asked my onc about it (I was being given it over 2 hours initially). We decided to change the infusion rate to 3 hours and add extra Magnesium for the neuropathy (I had it quite badly). It has made a world of difference. Since then, I have no fatigue whatsoever, no neuropathy, no nausea, nothing actually except burning in my mouth with doesnt seem to want to disappear and the sensitivity to cold which also now lasts the entire 2 weeks between treatments.
For any of you out there strugging with nausea and/or fatigue - ask your onc about changing your infusion rate -granted, it makes for a long day for me (I am now a total of 5 hours infusing on my first day but only 2 on the second, wearing the pouch of course) but the results have truly been life changing - I now have a life thru chemo which, if I was still feeling like I did at the start, I wouldnt have had much of one for these 6 months.
I have had a pet, cat and ultrasound which all show NOTHING (Thankfully) and my blood work has not changed at all throughout the chemo so far, i.e. no anemia, nothing! I am so very grateful for how this is going, I just cant express it enough.
Sorry for my rambling, but gratitude is good for the soul and I wanted to share my experiences with you as you have shared your's with me.
You are all, as am I, heros!